Hi everyone! Well, I am meeting with my surgeon on 2/26, & barring anything miraculous happening, will be scheduling a proctocolectomy w/end ileo. My husband & daughter are really supportive, have been great thruout the whole UC ordeal. My mother & sister, however, are a different story. A little background- we live with my Mom, she put her house in our name. My Dad passed away about
11 years ago, & we moved in shortly after- her idea, not ours. But it's worked ok. I've always had a strained relationship with her- she judges everyone, at all times, & believe me- everyone is lacking, in her mind. Me & my sister included. My sister lives about
15 minutes away, & we are close, our kids play all the time, we swap babysitting, etc. But the both of them... well, they wouldn't do it, no way. I don't know how to respond when they say that! I don't want to convince them it's the right thing, I just want to avoid talking about
it if that's what they tell me. My sister basically avoids the whole topic- I've been trying to talk about
it a little with her, she's not judgmental or anything, but she thinks it's the wrong thing also. I just don't know how to handle this. I'd like to think I could get support from my family, but it's not working quite like that. They'd wait awhile, it's so permanent, have I tried everything else???, everything seems to be working ok to them..... I'm at the end of my mental rope as is, having a very tough time hearing & seeing their opnions. And yet they tell me they'll support my decision... but the message I'm getting is that it's the wrong decision.
I guess I'm just venting, but... any advice???
diagnosed w/UC 2002
currently on Asacol HD, Imuran, Humira
deliberating proctocolectomy w/end ileo...