I'm so sorry about
your ordeal, but thankful that you have had the colectomy. The FP gene is frightful and demands immediate attention. Wondering if things were scheduled sooner, maybe the outcome would have been different.
Wanted to touch on the mental distress of what you went through. I went through similar events. Was
open and positive going into surgery, couldn't have mentally accepted it and prepared for it any better. My surgeon too went on vacation 5 days post op. I had a colectomy with small-rectum connection. The residents and attending surgeon neglected all the warning signs and I ended up having a ileostomy, and sepsis lead to catastrophic issues that rendered me 6 weeks hospitalized with 4 surgeries. I couldn't believe the extent of it all, and in the end, lost it. I'm most certain all the emotions you are going through, I did too.
Please hang in there. I'm glad you are not a lurker anymore. I found this forum 4 months after I returned home and I really wish I had way earlier. Those close to me were supportive, but the people here gave me a part of myself back. Strength, perseverance, wisdom, true kindred spirits. In the event that you need more assistance, seek out an ostomy support group near you. Dive into a craft, or your studies, keeping your mind off things.
I wish you my best regarding chemo and your mental health. You are not alone and we are here to help. Let us know your ostomy routine regarding your itchiness, could be the prep or wafer. Some here were taking for a short time, 3-6 months, antidepressants. Don't be afraid to ask your doctor if it all gets to be too much.
Post Edited (windy city) : 2/25/2014 1:34:10 PM (GMT-7)