Posted 2/26/2014 1:27 PM (GMT -7)
Sorry to hear your unexpected surgery. I too had unexpected surgery from gangrene(still not sure how I got it). They took out half my colon, about the same side of yours. You will learn a lot of things on here that will make the bag more easier to live with. I've learned things on here that doctors should have told me, but didn't.
What they did was took out part of your diseased colon. Mega colon is where your colon swells up beyond what it can stretch, and runs the risk of bursting.
Look up this" Rectal stump with mucous fistula" in the search box above and it will tell you about that.
I had reversal done 12 weeks after my surgery. They take your small intestines and connect it to whats left of your colon and close off the Ilieo. You will then go number two like normal. The problem will be, that without the rest of your colon, your bms will me much more often and frequent. I was diagnoised with UC after my surgery, although the dr found that out after the first surgery and didn't tell me.
I ended up having them remove the rest of my colon as I was going 20-30 times a day.
I love the bag as far as not running to the bathroom all the time and not having the pain. But i don't want to live with it for the rest of my life if I don't have to. So I am going to have J-pouch surgery done. You can research it on here or at jpouch.org.
You have options. This site is a great place to learn to help you decide what you want.
I see it this way, if the jpouch fails, at least I tried it. It wouldn't be the end of the world living with the bag. But were all different. Don't be afraid to ask questions, no matter how weird or private. It's the only way to get your answers. There is a lot of Veterans on here that have tried a lot of things which helps us learn from them.
Welcome to the forum.
49 yr old
Aug 2011 half of colon removed from gangrene.
Nov 2011 illiostomy takedown and diagnoised with uc.
Also take Paxil, triamterene hctz, ambien, prilocec, , Vit B complex, Multi vit, Acidophilus, Magnesium and calcium, Clariton, Vit D3,
Tramadal for pain
Have Fibro, Meniere's,
Having colon removed 12/17/13 no more uc