Subtotal Colectomy - June 27.

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Regular Member

Date Joined Aug 2005
Total Posts : 67
   Posted 8/10/2005 8:13 AM (GMT -7)   
Hello all,
I was introduced to this site by Amira.  I have been in touch with Emma as well.  My name is Kelly, I am 40 and live in Iowa.  After 15 + years of suffering I finally found a doctor to listen and agreed to do the surgery.  On June 27 I had all but 12" of my large intestine removed.  In additional to the constipation, my rectum is very tight making it difficult to pass stool at times.  I am a few weeks ahead of the others in recovery. 
Those first days and weeks were horrific.  The pain and not knowing what to expect, what to eat, what to do.  I not given any instructions except "try it".  That is scary because you don't know what the outcome will be.  I had MANY complications.  I don't believe that this surgery is done and someone does not have them.  My concern now is I feel I am getting backed up in to my small intestine and that is a KILLER. 
I still have dull pain in my pelvis area, I can not sleep on my right side, just hurts as well as my ribs.  I finally "learned" to fart again and that is nice.  I just push on my belly.  My stomach still protrudes out right below my belly button and is very sore to the touch.  If I walk to hard, or make a sudden move, my insides hurt.  Even bumps in the car are bad.
I would like to become part of your circle if you would let me.  I have no one here to talk with.  There was one lady I spoke with here before the surgery, she had it done 2 1/2 years ago.  I tried to contact her after and she will not return my call. 
Looking forward to hearing from  you.

Regular Member

Date Joined Jun 2005
Total Posts : 21
   Posted 8/10/2005 9:03 AM (GMT -7)   

Hi Kelly,

Hopefully you will see this message...just wanted to say hello and let you know that you are not alone.  I'm sorry to hear that you've had complications--did you have an open or laparoscopic procedure?  As I posted last night to Neelie and Linda on the total colectomy string, we all have our own unique stories and try to help each other.  There are a few people recovering right now who may be of great help to you. 

Also, I am from Iowa, but now live in the Chicago area.  I grew up in Cedar Rapids, went to school in Ames and spent some time in Des Moines.  Where in Iowa are you located (if you're comfortable posting that info)?

My thoughts are with you--I had some rectal pain too after surgery (had surgery in January)--there may be a few reasons for this which is why I'm wondering if you had open or lap surgery.  I think a lot of people are on special diets, but some are not.  I guess it depends on each situation.  My diet was low-residue -- no raw veggies, fruit, etc. for 6 weeks.  My whole large intestine/colon was removed, so I can't relate to having part of it still attached.  Did they remove part of it for constipation and/or is there a reason they left part of it?

Do take care and welcome to the circle.  I think you'll learn a lot if you read through the total colectomy posts over the past few months. 

Regular Member

Date Joined Jun 2005
Total Posts : 183
   Posted 8/10/2005 9:25 AM (GMT -7)   
Kelly my dear I am soooo glad that you found this website and we would welcome you to become part of the circle.  Just post to the big thread through, because people dont always read the small ones.  The big thread is entitled "total colectomy" and it is on its 4th thread... you will find alot of information on the other 3 threads which are easy to find! :)
I cannot relate the tight rectum and nor do I understand why you still have some intetsine left... but I might have an idea about the pain in your side.  Perhaps they had difficulty detaching your colon from either your liver or your spleen.  I had pain on the left side, and I found out it was because they had trouble getting my colon detached from my spleen and I have some bruising internally ...
Anyways... take care sweetie and just post when you need us or when you have advice for others. And I do agree with you... I dont think many people dont have a small complication but thankfully not many people have had major ones!

Regular Member

Date Joined Aug 2005
Total Posts : 67
   Posted 8/10/2005 10:10 AM (GMT -7)   
Thanks for responding.  I will put future posts and replys in the Part 4 of colectomy.
Just wanted to say that I am back to work now and so I don't have all that extra time to sit on the computer, drats.  Had to go back, wasn't getting paid.
See ya all in Part 4.
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