Posted 9/5/2005 5:37 PM (GMT -7)
Swim, shower, take long hot baths....and even go hot tubbing now and again! Although don't stay too long in the hot tub. I do think that it helps after the appliance gets wet to blow it dry with a hair dryer on a medium setting.

I am curious about the stoma cup, I have never heard of one but it sounds great. Where do you get them??
Happiness is a journey not a destination - Souza

Posted 9/17/2005 4:14 PM (GMT -7)
I got my stoma cup from whiterosecollection.com

I wouldnt be without it now.

Sorry I took so long to reply,i have been away on holiday.

Sue

Posted 9/17/2005 4:27 PM (GMT -7)
It seems everyone is happy with their ileostomy but has anyone here ever considered the BCIR surgery. I have had mine for only 8 weeks and it is the best thing I have ever done. I do not have to worry about anything external. I have complete control over everything. I love it. I know alot of people had no choice at the time of surgery to get an ileo but what about now. I know if I had been on steroids or to sick to wait I would have needed to have an ileo first and then converted in a couple of months. I just cannot tell you how happy I am now that the UC is gone and I truly just want everyone else to be happy as well and if another surgery is not for you then so be it I just wanted to put it out there. It has changed my life and I like not having restrictions and being able to wear form fitting clothing and swim with no worry.
Janene
Posted 9/18/2005 8:20 AM (GMT -7)
I got so excited about BCIR surgery , I wanted to get it done, but I found out they wont do it on people with chrons disease.  so that sinks big time.  I'm glad your doing good and I'm glad it works for you !!!

 
I Just tell myself, it could be worse !!!
          "Even with a Bag!!!"
                Tonia                                                                

Posted 9/18/2005 10:14 AM (GMT -7)
Yes unfortunately that is one of the unfortunate circumstances when they cannot the BCIR. They have done it on patients with crohns in the past but only if they have been in remission for a long long time. I guess because with crohns it can come back in other places and also I do know that the patients that have had the BCIR with crohns have more fistulas and pouchitis.
But for patients with just UC it is a life saver. Thank you TJane I am so glad it worked also. I honestly cannot put into words the difference I feel in my health. It is truly like night and day.
I haven't been swimming in so long because when I had UC I was always in the bathroom instead of the pool. We are going swimming next weekend before they finally close all the pools around here down. I think we have about 3 more weeks.
Well everyone take care and I hope everyone feels as good as I do, if not now, then soon.
Janene
Posted 10/6/2005 2:11 PM (GMT -7)
I have a swimming pool and swim all of the time. I bought some light-weight spandyx panties and wear them under my bathing suit. The pouch never moves and you don't see a bulge. This works great. I bought the panties at Walmart.

Sherrine

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