Hi Melissa, you should check out the UOAA message boards, there are very few colostomy patients here so most of the advice you'll get is ileostomy-centric. If your colostomy is fairly high up or you naturally have thin output, it might be productive to treat your colostomy more like an ileostomy (use a drainable pouch, get used to emptying 4-6 times per day.. this really is normal life for an ileostomy). Another option that I know a lot of colostomy patients use is irrigation -- I don't know a lot about
it or whether it would work for you, but my understanding is it allows you to empty more "completely" once a day at a time of your choosing. Definitely check out the UOAA boards. Your WOCN might have advice as well.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13