I totally agree with all of the above.
I struggled hugely with the decision to make the j-pouch -- I did three steps ultimately so I had a lot of time with my end ileostomy, which functioned PERFECTLY, to agonize over whether I wanted to go through with the j-pouch or not. I read TONS, even found the Cleveland Clinic formula for predicting j-pouch failure and plugged in all my numbers, and went to a therapist specifically to discuss the decision. As a woman my fear was not ED specifically, but I was scared of committing to additional surgeries, the possibility of pouch failure, chronic pouchitis, fistulae, etc. Essentially I felt that I knew I was OK with the ileostomy and it would be crazy to take a risk on additional surgeries.
But what I discovered in the end from talking to my therapist... a LOT... as well friends and family... was that I really just wanted the j-pouch. I didn't want to endlessly weigh the pros and cons, I wanted someone to say "You should do it." I wanted *permission* to do it even though it wasn't necessarily the most rational thing (totally arguable).
How old are you? What's your BMI? Do you have any other diseases or chronic health issues? How experienced is your surgeon? (these are rhetorical questions). The fact is that the 2% of people who suffer ED is NOT a random 2%. It's way more heavily concentrated among people who are older, who are overweight, who have chronic health issues, who are heavy users of tobacco or alcohol, and who have inexperienced or incompetent surgeons. That means that if you don't have those risk factors, your odds of developing a permanent issue are far less than 2%.
Finally, this is a bit off topic, but with 2+ years with an ostomy, I would talk to your surgeon about
having an anal manometry test if you decide to go through with the j-pouch. Even with regular Kegels the anal sphincters naturally lose strength from disuse and information is power in making your decision.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13