Silent Lucidity said...
Wise words as always Liz. How long after takedown should things settle and slow down, probably different for each individual, but there must be some sort of "ball court" figure?
Sorry to say it's different for everyone :) I know no one likes to hear that!! For me, my pouch was pretty good from the get go. My biggest problem in the beginning were spasms -- a sudden urge that I had to focus on holding that would come out of nowhere and then pass within a few seconds. I remember a lot of times walking down the street when it would literally stop me in my tracks! That gradually decreased and was no longer an issue after about
A lot of people say six weeks is the magic number, some people say 3-6 months, and some people say your pouch isn't really "matured" until 12 months. I passed the year mark over the summer and I think my pouch is still changing!
If the question is when should you start introducing stuff like bowel slowers and fiber, I would let your quality of life be your guide after the first couple of weeks. If you're having 12+ BMs/day and you're really miserable, that's probably a good reason to try Imodium (provided you've been checked and cleared for other issues first). If you're going 6-8/day and you just want to "tweak" and see if you can do "better," I would hold off for a few months.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13