I've had my stoma for 4 1/2 years now. I think it depends on how prepared you were before the operation, whether you had some time to adjust to the fact you WILL have a stoma. I suffered for twelve years with ulcerative proctitis, tried all the meds I was willing to try (not my GI doctor though), was prednisone dependent for two years prior to my operation, so I WAS ready. My surgeon told me I was not a candidate for j-pouch and then just sat back in his chair thinking I would walk out of his office. Instead, I told him..."I don't care if I need to have a bag, just get this disease out of my body". He looked surprised, but right then and there scheduled me for my operation. So, my answer it no, I never had an issue with having a bag. It gave me back my life. What I do have an issue with though, is that my surgeon left my anus intact and now I have UC inside the anus, which an new surgeon is trying to control with rectal meds
My surgeon retired in 2013. From what I gather, I was much too ill going into surgery for him to take the anus. He also told me there are more complications when removing the anus at the same time. Anyway, this new surgeon is blaming my use of Ibupr
open on this reoccurance. Mind you, it is nowhere near the suffering I endured when I had my rectum and colon. But, I was having some pressure and decided to find out what was causing it. My new surgeon did biopsies (I was under anesthesia), but there is no dysplasia or cancer. He sees no reason for removing the anus, but I will have to have biopsies every two years or so just to be on the safe side. I might add that I am 68 yrs old too.