Researching surgery options and would love to hear your j-pouch story. Everything I read has me leaning towards the perm ileo...would you go back to the bag if you could? Is the j-pouch better? I hear nightmare stories about
the j-pouch with regard to complications, butt burn, chronic pouchitis, going 5-8 times a day and even at night, etc...trying to make an educated decision before I pick a surgery that is so "final" if I pick the perm ileo. Any insight would be great!
Diagnosed with UC 2009, tried Asacol, Colozal, Lialda and Asacol HD with terrible results. Currently prednisone dependent, 10mg. Tried Imuran; liver numbers went through roof
Remicade 5mg/kg every 7-8 weeks
Methotrexate 12.5 injection once per week
Prednisone 10mg; Proctofoam as needed
Fish Oil, Tumeric, Vit D3, Calcium, B12, B complex, wellbutrin, Florastor and VSL#3DS