Is this is a new thing or has it been going on a while? Did you have any small bowel removed when the ileostomy was first created?
More to the point have you had any small bowel tests recently? What you are going through doesn't sound normal: the only time I had diarrhoea as bad as you are describing is when I had norovirus.
It's been going on for quite a while. The thing I don't get is sometimes it is thick but most of the time it is watery. I've tested different things that should thicken the output, but it doesn't. It's just kind of random.
I always have to go at night and then I will have a full bag in the morning too. I wake up exhausted every day.
I don't think I had any small bowel removed when I first got my ostomy. I might have to see if they can go through my records.
I've had a ton of tests. Last year I had a ileoscopy which showed nothing out of the ordinary. No active inflamation. I've had tons of bloodwork and some stool tests. The only thing that was different is it showed I had "Many yeast". That's when I started taking the flucanozole. It worked the first time but didn't work the second time. It was nice to be able to burp my bag and not have an aweful smell that lingers for 30 minutes. I just wish it stayed that way.
Kind of a side note... I saw a psychic who is supposed to be really good. All he knew about
me was my name and he ended up keep saying there is something wrong in the abdominal area. I just ignored it and he kept bringing it up so finally I told him I had crohns disease. He didn't know exactly what it was. I explained my situation about
going to the bathroom quite frequently and he said that I need to check my surgery records and that something happened during surgery. Not quite sure what, but I don't know how to bring that up to my doctor without sounding crazy lol