Really fast transit time

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Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 6/25/2015 12:24 PM (GMT -6)   
So I've been having really fast transit time. If I drink coke it comes out in a few minutes. If I go out to eat and eat a cheeseburger I have to go about 4 times in an hour. Just about everything I eat including mashed potatoes, apple sauce etc... things that should thicken it up and slow it down, still come out in less than an hour or two. My output is also the consistancy of water. I feel dehydrated all the time. I have been working with my doctor to try and fix this issue for the past year, but it's not working. They are throwing everything at me that like Immodium, lamotil, tincture of opium etc.. Nothing helps. I am pretty much tied to the bathroom. I am always stopping at gas stations when I go out.
I have an ileostomy and have had a revision and they took 12" out. They said that I should not have short bowl syndrome. Has anybody had this issue and have they found a way to fix it? The only thing that helped for about a week was flucanazole. It thickened up my output, slowed it down and it didn't smell. I tried a second round a month later but that didn't work.
I don't know what to do because this everything is centered around my ostomy.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 6/25/2015 10:23 PM (GMT -6)   
I bet you are feeling dehydrated. Have you tried increasing your salt intake and drinking Gatorade/coconut water. Pretzels and chips help me retain some fluid.
I drive a bus with no air and I've found eating salty food with water or other fluids help me when I'm pouring sweat.

I do not like coconut water, but have found buying the plain coconut water and mixing a tsp of orange Tang makes it bearable to drink.

I'm guessing you could have short bowel syndrome. We are all different. When I had my loop ileostomy, I had straight liquid output. If I ate the orange peanut butter crackers, I could see it in my output just exactly like a chewed up orange cracker. It was bizarre. But when I got my end ileostomy, that stopped and I seem to have a much slower transit.

Have you had blood work to check to see if your malnourished? Are you able to keep weight on? Have you tried Devrom for odor? You might need the maximum dose to lower the odor.

I wish I could help more.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10559
   Posted 6/26/2015 8:40 AM (GMT -6)   
Is this is a new thing or has it been going on a while? Did you have any small bowel removed when the ileostomy was first created?

More to the point have you had any small bowel tests recently? What you are going through doesn't sound normal: the only time I had diarrhoea as bad as you are describing is when I had norovirus.
Dx Crohn's in summer of 2000. (Yay skull)
Tried and failed: 5-ASAs, Azathioprine, 6MP, Remicade, Methotrexate, Humira.
Diet didn't make any difference either.
Became steroid-dependent.

Had surgery 2/13 - subtotal colectomy with end ileostomy. Currently on no meds and in remission. Also prone to depression and anxiety. Ask me anything >_>

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 6/26/2015 1:19 PM (GMT -6)   
answers4me2 said...
I bet you are feeling dehydrated. Have you tried increasing your salt intake and drinking Gatorade/coconut water. Pretzels and chips help me retain some fluid.
I drive a bus with no air and I've found eating salty food with water or other fluids help me when I'm pouring sweat.

I do not like coconut water, but have found buying the plain coconut water and mixing a tsp of orange Tang makes it bearable to drink.

I'm guessing you could have short bowel syndrome. We are all different. When I had my loop ileostomy, I had straight liquid output. If I ate the orange peanut butter crackers, I could see it in my output just exactly like a chewed up orange cracker. It was bizarre. But when I got my end ileostomy, that stopped and I seem to have a much slower transit.

Have you had blood work to check to see if your malnourished? Are you able to keep weight on? Have you tried Devrom for odor? You might need the maximum dose to lower the odor.

I wish I could help more.


I am always feeling dehydrated. I always want to drink a whole bottle of water, but I don't, because it will just come out in the bag. I have tried different hydrating solutions like drip-drop. I do drink gatorade quite frequently. I always eat something before I drink because that's what the nurses said to do.
My doctor said "I don't think you have short bowl syndrome".
My bloodwork has been checked. Everything came back normal. I am also able to keep weight on. I tried Devrom a long time ago when I was having issues when the smell was even worse. It didn't do anything for me and I finally found out that I was bleeding. That's when I had my revision.

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 6/26/2015 1:28 PM (GMT -6)   
NiceCupOfTea said...
Is this is a new thing or has it been going on a while? Did you have any small bowel removed when the ileostomy was first created?

More to the point have you had any small bowel tests recently? What you are going through doesn't sound normal: the only time I had diarrhoea as bad as you are describing is when I had norovirus.


It's been going on for quite a while. The thing I don't get is sometimes it is thick but most of the time it is watery. I've tested different things that should thicken the output, but it doesn't. It's just kind of random.
I always have to go at night and then I will have a full bag in the morning too. I wake up exhausted every day.

I don't think I had any small bowel removed when I first got my ostomy. I might have to see if they can go through my records.

I've had a ton of tests. Last year I had a ileoscopy which showed nothing out of the ordinary. No active inflamation. I've had tons of bloodwork and some stool tests. The only thing that was different is it showed I had "Many yeast". That's when I started taking the flucanozole. It worked the first time but didn't work the second time. It was nice to be able to burp my bag and not have an aweful smell that lingers for 30 minutes. I just wish it stayed that way.

Kind of a side note... I saw a psychic who is supposed to be really good. All he knew about me was my name and he ended up keep saying there is something wrong in the abdominal area. I just ignored it and he kept bringing it up so finally I told him I had crohns disease. He didn't know exactly what it was. I explained my situation about going to the bathroom quite frequently and he said that I need to check my surgery records and that something happened during surgery. Not quite sure what, but I don't know how to bring that up to my doctor without sounding crazy lol

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 6/26/2015 4:08 PM (GMT -6)   
Not sure if you remember Rosemary, but when she went in for her last surgery, the surgeon said she barely had any small intestines left. It was a shocker because no doctor admitted taking a lot of her small intestines.

She was left with short gut syndrome and had tons of watery output everyday.

Have you ever measured your output to see how much you have everyday?
End ileostomy due to colonic inertia and pelvic floor dysfunction.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/26/2015 4:56 PM (GMT -6)   
Brian84~you mentioned smell...have you been tested for c-diff?

I'm sorry you are going through such a difficult time. Have you tried removing sugar (and the fake stuff, too) to see if that helps? It doesn't surprise me that a coke would go through quickly...it does for me, too...but maybe your body cannot tolerate the amounts in normal processed foods/drinks.

You can google the WHO electrolyte solution recipe and try that. There is significantly lower amounts of sugar in that than production drinks. Personally, I do not use them and find eating food (like already mentioned) with salt helps me.

Do you keep a food diary? Log EVERY items that you consume AND how it effects you...you might see a trend.

Last thought would be a second opinion? Keep us posted!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

AnnaIvy
Regular Member


Date Joined Jun 2015
Total Posts : 93
   Posted 6/29/2015 6:48 AM (GMT -6)   
What doses of Imodium and Lomotil have you been taking? I don't need them now I have my ileostomy, but before I would well over the recommended amounts for both along with codeine. Bigger doses have stronger effects, and they're safe meds so my doctors didn't mind me taking lots, you might find a doctor who will up your doses. You need to be careful with codeine as it's addictive though.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5159
   Posted 6/29/2015 12:33 PM (GMT -6)   
With J-pouches sometimes they prescribe a pancreatic enzyme to thicken the output; I can't remember the name of it right now.

Are you using a magnum bag? I had to use a magnum size bag with my loop ileo because my output was so high and the same meds that you tried didn't work for me either. My loop ileo was only temporary so I didn't live with it too long but I can sure sympathize with you after living through 3 months of it.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cyclosporine -- Twice
3-step J-Pouch surgery:
Colectomy- October 2013
J-pouch Creation: March 2014
Take-Down: June 2014

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 6/29/2015 3:34 PM (GMT -6)   
answers4me2 said...
Not sure if you remember Rosemary, but when she went in for her last surgery, the surgeon said she barely had any small intestines left. It was a shocker because no doctor admitted taking a lot of her small intestines.

She was left with short gut syndrome and had tons of watery output everyday.

Have you ever measured your output to see how much you have everyday?


I've never measured it in ML but when I did my fecal fat test for 24 hours I collected 1205grams or 2lbs, 10oz.

Normal range for fecal fat is 2-7 and mine was 14. They did say that since I have an ostomy it is to be expected.

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 6/29/2015 3:51 PM (GMT -6)   
Equestrian Mom said...
Brian84~you mentioned smell...have you been tested for c-diff?

I'm sorry you are going through such a difficult time. Have you tried removing sugar (and the fake stuff, too) to see if that helps? It doesn't surprise me that a coke would go through quickly...it does for me, too...but maybe your body cannot tolerate the amounts in normal processed foods/drinks.

You can google the WHO electrolyte solution recipe and try that. There is significantly lower amounts of sugar in that than production drinks. Personally, I do not use them and find eating food (like already mentioned) with salt helps me.

Do you keep a food diary? Log EVERY items that you consume AND how it effects you...you might see a trend.

Last thought would be a second opinion? Keep us posted!


I have been tested for C-diff with negative results. I "Try" to not eat sugar or things with a lot of sugar (candy, soda etc) but there is sugar in almost everything. I do not keep a food diary but I should.

AnnaIvy said...
What doses of Imodium and Lomotil have you been taking? I don't need them now I have my ileostomy, but before I would well over the recommended amounts for both along with codeine. Bigger doses have stronger effects, and they're safe meds so my doctors didn't mind me taking lots, you might find a doctor who will up your doses. You need to be careful with codeine as it's addictive though.


2mg, 2 pills 3 times per day or 4 times. and 2.5mg of lamotil 3x per day

ks1905 said...
With J-pouches sometimes they prescribe a pancreatic enzyme to thicken the output; I can't remember the name of it right now.

Are you using a magnum bag? I had to use a magnum size bag with my loop ileo because my output was so high and the same meds that you tried didn't work for me either. My loop ileo was only temporary so I didn't live with it too long but I can sure sympathize with you after living through 3 months of it.


No. I use the 10inch bags. I have to empty all the time because I don't want to walk around with a huge bulge in my shirt

AnnaIvy
Regular Member


Date Joined Jun 2015
Total Posts : 93
   Posted 6/30/2015 4:36 AM (GMT -6)   
Brian84 said...


2mg, 2 pills 3 times per day or 4 times. and 2.5mg of lamotil 3x per day


I used to take 10 x 2mg Imodium and 10 x 2.5mg Lomotil a day. It's more than recommended, but I found it made a difference.
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