No, the jpouch gave me my life back. The outdoor life I wanted. The Iceland hike would have been very difficult for me, emotionally, with an ostomy. We shared bunk beds with strangers, men and women together in huts, changing clothing was done in full view of everyone as was personal hygiene. I never talk about my surgery to others, I never share that I am 'different'. I am very private. I would not have been able to do this hike with an ostomy without revealing my difference publicly, that I don't do even with my jpouch. Also I have backpacked extensively with my jpouch, something else that would have been problematic with an osotmy due to waist straps and lack of potable water for cleaning.
Again, this surgery is not a bad idea physiologically, but it certainly doesn't work for everyone.
I think you are making SL's point that many people claim their jpouch as a success mostly because it avoided an ileostomy for them. You said your issue with an ostomy is emotional. I had no issue showing people my ileostomy and certainly find that much easier than trying to explain the jpouch which no one can see but still heavily affects my daily life. These personal preferences were translated into "success rates" which convinced me that jpouch was reasonably safe in comparison to end ileostomy. I think that that is highly misleading, especially for someone who would not have image issues with ostomy.
Nobody has addressed the physiological concerns in my initial post (metabolic effects such as B-12, inflammation and fecal stasis where it is not supposed to happen).
Maybe the most alarming thing I read is this article from Cleveland Clinic:
"[Patients] must, however, be carefully counseled and informed that [Jpouch] is associated both with a higher rate of long-term complications, including the risk of de novo CD and pouch failure and even conversion of
Basically, Jpouch patients are more likely to see Crohn's disease changes, even after pouch excision and perm ileo. In this study about
less than half of failed Jpouch patients develop small bowel Crohns, while only 8% of original ileostomates do.
Again, you can see what the consequences might be of taking the terminal ileum and putting it in a situation where it is predisposed to inflammation.
21 y/o male
UC: Diagnosed proctitis September 2013; pancolitis January 2014
Conventional drugs not successful
Antibiotics help a lot, Low Dose Naltrexone, CBD oil, Fish oil, Turmeric, occasional Vit D
SCD probiotic yogurt
FMT 11/2014 w/ antibiotics & antibiofilms, aborted after 6 days worsening symptoms
Nothing worked. 12/2014 Proctocolectomy with ileal pouch anal anastomosis