My hospital has two stoma nurses, so I would see either of them. Unusually for NHS staff, I could email them, which suits me a lot better than using the phone. To be honest, I can't imagine a stoma nurse who doesn't deal with ostomy issues - what do
they do then? Every time I had a query about
the stoma, I'd ask one of the nurses about
it. They also dealt with minor issues that cropped up, like granulomas and mild skin irritation.
They also used to deal with prescript
ions, but that task got outsourced to GP surgeries a few years ago. I don't know much about
it, other than my stoma nurses weren't happy with the change. One downside for the patient is that supplies take longer to arrive. Another downside is costcutting GPs who don't want to shell out for expensive supplies. This didn't affect me, but I read a right horror story about
an elderly man who desperately needed more supplies, but whose GP refused to prescribe them and he ran out. Hopefully that's rare, as I would absolutely hate to be in that position.
As for your diagnosis, ex-UC? I'm not sure. That's a point actually. Do ex-UC folks with successful ileostomies or j-pouches still see their GIs? I don't know. Me, I had Crohn's so I'm considered to be in remission rather than Crohn's-free.
Dx Crohn's in summer of 2000. (Yay )
Tried and failed: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, various diets.
Had surgery Feb '13 - subtotal colectomy with end ileostomy. First thing to put me into remission in 13 years.
Had second surgery 10th July '15 to reverse the stoma and connect the ileum to the rectum. Feeling rough.