Ileostomy Reversal Scheduled 11/04/05

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New Member

Date Joined Oct 2005
Total Posts : 2
   Posted 10/23/2005 11:01 AM (GMT -6)   
I am new to this site, this is my first time here.  I was diagnosed with Crohns in 1986 when I had a bowl resectioning for a bowl obstruction.  Since that time I was pretty much disease free, until last year (Sept. 2004), when severe abdominal cramping brought me to the hospital, and eventually 2 surgeries to remove diseased bowl, resulting in a ileostomy.  I was told then that I had all my colon, but there was so much damage that while possible, it was not probable to ever be reconnected.  Since Sept. 2004, I have been hospitalized 4 times (twice in the last month) for severe dehydration.  This last time, a new team of doctors told me that being reconnected really was my only option.  After barium drinks and enemans, was informed that we could scheduled the surgery for Nov. 4, 2005.  Because there were so many complications with my surgery in 2004, I was in the hospital over 3 months, then a transition center in order to keep getting TPN for unusually high output, which has never really settled down.  Now this surgery seems to be happening so fast, and I want to be reconnected.  But it is all new doctors, even laproscotic surgery; they make it sound quite routine.  Can anyone talk to me about this?  I live several hundred miles away from where my first surgery took place, so don't have the same access to my former team of doctors as before.  Wonder why one team would think it not likely and another team would highly recommend it?  Would appreciate any and all feedback.  Thank you.  JosieR

Post Edited (josier) : 10/23/2005 10:14:57 AM (GMT-6)

Regular Member

Date Joined Nov 2004
Total Posts : 111
   Posted 10/23/2005 6:02 PM (GMT -6)   

Hi! I am sorry to hear you have had so many problems, and I wish there was something I can say to help you.

My DH had 6 surgeies this summer, last resulting in a PERM colostomy. Months after we are being told there were other options and he didnt need it so Doctors well they confuse me and I dont know what to say or do with them anymore.


Good LUCK!!

       DX with IBS and Vulvadenyia   
 DH diagnosed at 17. Currently on Prednisolone, Remmicade, Pentasa and Fosomax.
Bowel Resection April 04, 5surgeries since June 05 for Peri-Rectal CD (newly diagnosed area) Permanent Colostomy July 05

New Member

Date Joined Oct 2005
Total Posts : 2
   Posted 10/23/2005 6:24 PM (GMT -6)   
Thank you for your reply. I have been getting quite a few replies, the bulk of them highly suggesting I do not have this surgery, that it would not be advisable with my history (too many adhesions, other problems, etc). I am going to take their advice and seek a 2nd opinion from the Mayo Clinic in Rochester. Thanks again. I think all of you people potentially are saving my life. Sincerely, JosetteR (Josie)
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