One suggestion did help a bit... benadryl - but it makes me too sleepy for work! ( I have a very boring, non stimulating job.) I could take 3 at a time and still be awake... and the itching greatly reduced... but very tired.
I am thinking to try other over the counter anti-hystamines, like claritan and zyrtec.
Absolutely, ABSOLUTELY try Claritin or Zyrtec. I mean this in the nicest way possible but the doctors who have been helping you with this issue are f-ing useless if none of them suggested a different anti-histamine after Benadryl helped. That's something a primary care doctor should have been able to come up with, to say nothing of a dermatologist.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13