Anyone who has a permanent stoma is going to end up with an end ileostomy, not a loop one - loops are temporary. If you're gonna make a comparison with a j-pouch, it should be with an end ileostomy only.
Most of the problems I had with mine were psychological. I just didn't like dealing with boxes of supplies, worrying about when to order new supplies, worrying about when they would arrive, etc. It's a kerfuffle. Plus at the back of my mind there was the fear that society would collapse and I would be screwed: I wish I could say I was exaggerating, but I'm not particularly. I suppose it boiled down to having a stoma and being dependent on specialist supplies made me feel more vulnerable.
But things like gas, fast output, skin issues, etc. were rarely a problem for me. In the first year I would have to get up once a night to empty the bag - that dwindled to zero over time. If I compare that to what I'm going through now, all I can do is laugh. Hollowly. On the downside, I'm a stomach sleeper. Can't change that, so I had to adapt with an ileo.
I can't claim I ever loved having an ileo, but I do realise now there are worse things than having one. Like being reconnected and going through takedown hell.
lol, i've never minded supplies so much. I don't like the idea of needing them, especially if I have out-of-pocket costs, but the actual ordering and having them around I am okay with. I like trying new stuff, it's kind of fun. I get a sample and I look forward to giving it a shot. I always have extra products on hand. I don't like when I get down to 2 wafers, especially with this loop. With my end, I didn't care because I knew I would get 7 days. This thing I could ruin 2 wafers in a few hours. I need a full box on the shelf. I also usually have a few different items that I can use (one piece, 2 piece, different brands, mini, closed), sometimes I feel like wearing one thing over another. I get my items via fedex the day after I order so timing isn't an issue - unless it's something new and I need a "prescript
ion", then it could be a few days. It's not fun with this loop because it's very active and I change way too often to play around, but with my end, I could try anything and it was no biggie because everything worked as intended.
I have thought about
that, like "walking dead" situation, I would be doomed. I mean, how much can you stockpile and carry around? It would be crazy... luckily that is fiction and it's not going to happen.
What you're currently dealing with sounds like living with active UC and living with the end ileo is definitely way better. Not sure if the loop I have is though. Changing every day is a pain. I guess once I change, I usually get 24 hours, and 24 hours without worrying about
pooping my pants is still better than active UC.