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Leaks.....ARGH!!

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Ostomies
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UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 12/24/2015 9:17 AM (GMT -7)
This post is probably more of a vent than anything, but I'm always open to suggestions too. I don't know what the problem is, but out of nowhere I've gone from getting 6-7 days wear time, easily, to more like 2-4 days before I wake up in the middle of the night with a leak!!

I have had trouble with overnight leaks in the past, but was confident I had solved those issues for the most part by switching to a Convex wafer. There is nothing I can think of to explain why this has started happening again, but it is super annoying! Like I said...this is really just a vent because nobody else understands what it's like to wake up at 4AM, feel that dampness (or worse!) near your belly and have to drag out of bed to go through all the clean up, removal, application, etc.... I'm really thinking that there is no perfect wafer/bag for me, and I'll just have to deal with the random leaks and unpredictable wear time...oh joy :)
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Eva Lou
Veteran Member
Joined : Sep 2006
Posts : 3444
Posted 12/24/2015 10:57 AM (GMT -7)
did you switch wafer brands? Start using a new body soap? Are the leaks happening with wafers from a new box, all from the same box? Sometimes you get a bad batch.... I understand, I've had stupid ostomy things lately- leaky Mio (no surprise), then I tried to burp the bag 1 night in bed, & stuff spurted all over me, just annoying things like that. But you're doing everything the same as you did before, when you put a new wafer on? Huh. Are you eating more before bed? You could try to use a blow dryer when you put on a new wafer, heat it up so it really sticks on good. I'm sorry I don't have more suggestions, just trying to brainstorm. Call the manufacturer too, explain what's happening, they may have some cool samples to send you. Do you have a WOCN you can call on? I suppose in lieu of everything else- stick one of those rubberized crib sheets, for babies, on your bed! I used 1 the first month or so after surgery, was positive I'd have a night-time blowout. Never happened, still hasn't. You can get those crib sheets at K-Mart, Target, any mid-level dept. store.
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Silent Lucidity
Veteran Member
Joined : Nov 2007
Posts : 625
Posted 12/24/2015 11:44 AM (GMT -7)
Have you tried barrier rings? I swear by Hollister Adapt rings, along with convexity. The Brava strips that go around the outer edge of the wafer are good too. They don't prevent leaks as such, but very often they'll contain one, so it's noticed before getting messy, allowing the wearer to get a change done. A well applied barrier ring and convexity will do wonders to prevent leaks though.
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UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 12/24/2015 3:35 PM (GMT -7)
Thanks for the responses and suggestions y'all!

@Eva~ I have not switched any of my brands or types of products. I actually use 2 different Convatec wafers, and just switch back and forth between them. I've searched high and low for a set up that is "perfect" for me, and the closest I came is finding two that are almost good enough...eh. The return of night time leaks and shortened wear time is happening with BOTH of the wafers I use, so I wouldn't think it's the bad batch problem. Nothing has changed with my activities, eating habits, soap, how I put the wafers and such on...I just don't get it! I thought about calling my WOCN, but at this point I've tried SO many products, I feel like I know as much as her. Luckily this time around, the leaks haven't been so bad that I have to change sheets...YET! I sleep in high waist jammie pants that cover the bag/wafer and I am a super light sleeper, so I wake up at the first sign of trouble.

@Silent~ I do use barrier rings. For a while I was using the Adapt rings, but tried some samples of Eakin Slims and had a lot of success with those. Sometimes after I apply the Eakin Slim, I'll cut off part of an Adapt ring to put a little extra layer right up against the stoma, or in uneven areas. I also have the Brava Strips and Sure Seals, which DO work great to contain leaks, but they both irritate my skin a bit. I still use them sometimes, but try and not to anymore than I have to in an attempt to keep my skin happy-ish.

Some people have mentioned that they have had luck going with NO barrier ring at all, and I suppose I could give that a try, but I feel like it wouldn't work for me.

To make matters worse, I was just about to order A LOT of supplies because I maxed out my insurance this year, so anything I order now would be free! If I wait to order next yet, not free at all!!! So, now do I risk ordering a bunch of stuff I won't even be able to use? I already have a lot at the house...grrrrrr.
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blksteeda
Veteran Member
Joined : Dec 2009
Posts : 1709
Posted 12/25/2015 1:41 PM (GMT -7)
I don't use barrier rings, I actually had leak issues with the rings. I currently use the ConvaTec Convex Moldable Barrier which has worked very well. The moldable material swells to turtleneck the stoma once it gets wet and seals very well for me.
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polishdan
Veteran Member
Joined : Mar 2010
Posts : 1595
Posted 12/26/2015 7:12 PM (GMT -7)
Ucwhat
Have you tried what I have suggested many times on this forum? Paper towel, water, BCT..?

Dan
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Equestrian Mom
Veteran Member
Joined : Mar 2008
Posts : 3115
Posted 12/27/2015 6:15 PM (GMT -7)
Sorry to hear that's happening. Just wanted to let you know you aren't alone...I go through times where my very predictable stoma goes through some rebelling and the appliance that has worked forever suddenly doesn't.

My nighttime issues happen when my stoma sneaks below the opening. I am also a light sleeper and can usually catch it (since I usually don't feel my stoma, I know when I do, there's something wrong). Sleeping on my side keeps any nighttime leaks to a minimum.

Go ahead and order supplies...your supplier should exchange any unexpired/unused full boxes if you find you have to change your appliance. But, I always keep samples/old wafers/pouches for the simple fact that even just gaining a few pounds can change my stoma and I may have to go back to one of them. I am actually in the middle to reevaluating my current appliance...and like you, I haven't changed anything...it is just not behaving the same.

Hang in there!!
p.s. try the Compound Benzoin Tincture if you haven't already...I found it does make a difference
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cupcakespinkgal
Veteran Member
Joined : Jun 2010
Posts : 1566
Posted 12/28/2015 12:02 PM (GMT -7)
I used the Bed Buddy heating pack after each change to help seal everything together. I used stomahesive paste instead of a barrier ring then would microwave the bed buddy for 45 sec just so its warm then laid it on my shirt covering the whole flange for about 5 minutes. It was a tip i got early on and I think it helped.
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blueglass
Veteran Member
Joined : Dec 2010
Posts : 3332
Posted 12/28/2015 3:57 PM (GMT -7)
I feel your pain.... I thought I finally had a system with my new stoma, and then bam, I had two leaks in a row.... my system is very complicated, and I think I messed up some of the steps, mostly pushing down hard on the wafer when I put it down... but really not sure....

Now I'm using the brava strips -- used to use sure seals -- and having that extra layer makes all the difference in the world to me. Those leaks did not actually leak past the strips, so they just itched and irritated my skin, but didn't get ouput all over me.

One thing I have learned from having two stomas, though, is that stomas can be really different from each other. I had much more of a "less is more" approach w/my old stoma, but now I'm using BCT, paste, a barrier ring, and the brava strips (plus cutting off the tape that comes w/the wafer and hair dryer). Whenever I decrease the products, I get leaks or less wear time.... happy now that I can mostly get three days reliably and often four... I think it's the best I'll get w/this one.

Hope your leaks stop soon.
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CrohnieCJ
Regular Member
Joined : Jan 2011
Posts : 424
Posted 12/28/2015 10:05 PM (GMT -7)
With the exception of the use of paste, my products and system is pretty much just like what Blueglass described.

BCT is definitely one of the best products in my arsenal. The Brava Strips are also invaluable as I also cut the tape off of my favorite appliance [Convatec Moldable] due to sensitivity to the taped border.

I warm the Eakin and my wafer with my hairdryer prior to their application and then also after everything has been applied.

My wear time also increased when I added the use of my "gadget" which is merely a PVC cap that I got at Lowe's or Home Depot. Mine is 1 & 1/4 inch and was like 65 cents. It helps with adding firm and steady even pressure around the stoma after applying the wafer. I alternate using it with the hairdryer a couple of times once my appliance has been set. Here is a website with a picture of my "gadget". It comes in different sizes.

www.pvcfittingsonline.com/447-020-2-schedule-40-pvc-cap.html
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blueglass
Veteran Member
Joined : Dec 2010
Posts : 3332
Posted 12/29/2015 6:01 PM (GMT -7)
Crohnie, I think that gadget is a good idea, and I'll look into getting something like that, thanks! With my old stoma, wouldn't have been necessary, but the convatec seems to need some pressure to get it to stick at first.

My skin does not like that tape at all!
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Zaneluke
Regular Member
Joined : Apr 2007
Posts : 66
Posted 12/31/2015 6:10 AM (GMT -7)
I use the c ring barrier strips from coloplast. They provide and extra inch of protection around the edge. I run and when I do I always have a leak, no way around because i sweat under the seal, but the c shape strips keep it contained. I am also allowed to order 8 rolls of tape every three months. When I sit in the hot tub or go running I put an layer of tape around the c strips. I use the latex free zinc oxide pink tape.
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Nazareth
Regular Member
Joined : Jun 2014
Posts : 72
Posted 1/6/2016 12:16 AM (GMT -7)
try Hollister medical adhesive without any Eakins or extra seals- I've used it for years and have had good success with it- until recently- (I'm having leak issues now too- due to gaining weight- have to try something different I guess) spray both around the stoma and on the pouch seal- spread with finger- allow to dry- make sure skin around stoma is dry right before putting on, and apply pouch- hold inplace for a minute or two- it should hold until next day at least-

I'm going to be trying benzoine compound tincture in the next week or so- see if that is any better-
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UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 1/12/2016 8:40 AM (GMT -7)
Thanks for the replies everyone! The next couple wafers I have used seem to be lasting my normal average. Last night I thought for sure I had to change to avoid a leak, but when I took the wafer off I appeared to be mistaken. That is one thing I hate about some of the Convatec wafers I use...the tape border starts to lift away right around the hard center part of the wafer, and can make it feel like there is a leak when there is not. Speaking of, I would love to hear how those of y'all who are cutting the tape border off secure the wafer instead. The tape bothers me, which is why I switch between 2 types of wafer...but the Sure Seals and Brava strips bother me too... :(

Also, I finally ordered some BCT, and tried it for the 1st time last night. I'll give it a couple tries before I decide for sure, but so far I don't love it. The smell is awful and not going away, it burns and seems to have caused skin irritation along the bottom edge of my wafer. It doesn't help that last night there must've been a small part of the bag/wafer that wasn't totally sealed, so enough liquid leaked out to saturate the tape border on my wafer. I didn't want to change the whole set up less than 12 hours after putting it on, so I just cleaned it up well and will maybe change earlier than normal....ugh. The fun never ends.
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blueglass
Veteran Member
Joined : Dec 2010
Posts : 3332
Posted 1/15/2016 7:15 PM (GMT -7)
Sorry you're still having trouble. Such a drag.

As for cutting off the tape: the brava strips sometimes bother me a little but nothing like the tape which just gets my skin bright red within a day. I did try a little test on another part of my belly with a few different skin preps and the tape and the cavilon seemed to help but in practice it still gets itchy with the tape.

I did try the pipe idea that cj had -- first time got an extra day With it. Second time had a problem probably unrelated. But I'm optimistic. Thanks!

I kind of like the bct smell. But as someone said on the other thread I use a hair dryer both before and after I put it on to make sure it's all dry.

Hang in
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