Posted 12/27/2015 8:01 AM (GMT -7)
I'm not exactly longtime just yet, but coming up on my 2 year mark with a perm end ileo. My output schedule has changed drastically the past month or so- it used to be pretty constant, I'd empty 4-6x a day, not a ton, but stuff. Now, I go all day, basically, without having to empty. My bag fills up to the max overnight, so I empty right when I get up, then 1 more time before I go to work. Then, I don't have to empty again for another 7-8 hours, & maybe one more time before bed. So, every night, I start to freak out & think "Is it blocked?!?!". There's no pain, no symptoms of blockage. And of course, overnight things start moving. It's as if my small intestine has truly taken over, & is behaving like a "normal" persons colon- you know, get up in the AM, have a decent BM, then you're fine for the day. Does anyone else find this to be the case? I don't mind, but I have to get over that blockage fear! It's actually a nice schedule!