Hi everyone. I am new here. My sister actually had the colectomy, but she is not a fan of computers, so I thought I might try to ask about her situation.
She has lived with basically an inactive colon for 20 or more years - has not been able to have a bowel movement for all of that time, no meds or foods worked, relied on enemas 3-4 times a week to clean out bowels. This all probably due to an ongoing eating disorder and some laxative abuse very early in the game.
She had a total colectomy (4/5 of colon removed, but that is what they called it) a few weeks ago, laparascopically. She was supposed to be out of the hospital in 3-7 days, was in 2 weeks. Very few bowle sounds, and 2 small episodes of diarrhea after ingesting fluids for a GI test. No blockages or other internal problems were noted, but she continues to be very sick after attempting to eat anything, and the cramping and pains are terrible. One day she had several bowel movements (very watery), the next day none. Still had pain and such after eating and even when she had not eaten for a while. In the hospital, she had TPN for a few days, but they took her off of it when she went home mid-last week.
We do not understand why she has not had some normal bowel function restored at this point, and why she is still in so much pain. She was on narcotics in the hospital, but finally got off of those a few days before she left, as they could also impair motility.
Is this OK/normal/acceptable? Any similar stories or ideas that I might pass along to her? Or referrals to where I might get more information? (All of the studies I have looked up refer to restoration of bowel activity within 3-10 days. It's been almost 20 for her.)