Posted 5/24/2016 8:55 AM (GMT -7)
I'm glad you asked this question (hopefully there are some people in here who have experienced the same and can shed some wisdom). I have had my temp loop ileo since since 2013, and am thinking that at some point in my future I will need to change to permanent ileo. My loop ileo is working fine, even though it takes some work keeping up with the nutritional and dehydration issues. I too am so scared about changing it. I am fearful of another surgery and all that could go wrong. Can you share the reason that you are changing your temp for a permanent? I am wondering if we share the same medical issues? I had rectal cancer and was reconnected with the intent of reversal, but I am terrified to go down that road. So now I still have my remaining rectum and colon in me that is not active, but I have great difficulty with colonoscopies to check for any new polyps or signs of the cancer returning.
As to your question about a supplier, I use Byram Healthcare and have had no problems.
Thank you for reading this, and I really look forward to wisdom or advise.