Questions, do you wear a bag after you irrigate to try to cut down on the smell? How long ago was your surgery? Is the pain from eating in your colon or stomach? Do you have a support group of any kind? Because I hear a very isolated person that is asking for help. That's when you don't need to be alone with your thoughts. It's nice to be able to bounce ideas off of one another. Plus every once in a while you might come across someone in a forum that is able to help because they have the same issue
Hi Clo, its very nice to meet you. I always wear a bag after irrigation to catch any remaining liquid, which usually comes out within 30 min. Hard to localize the pain. The whole abdomen swells up. Difficult to walk. Heavy stomach. Neck hurts when sitting. Until irrigation. Then am a walking skeleton again. Also intense pain when trying to run, causing me to double over. Basically the whole abdomen is shot.
No support group. People universally hate someone who smells.
Finally, I understand the smell thing. I stink when I take off my bag, even after I shower I can still smell myself. If I let the stoma "breathe" for a few hours without anything on it...the smell goes away... Perhaps I am just very lucky it is like that. If I had to smell myself when I was stinky..well I would cranky.
Wow, never heard of anyone doing that. Very interesting that you came up with that.
Do you stay in the bathroom for several hours? Or do you leave the bathroom and walk around with no bag on?
You didn't mention what type of colostomy you have. Is it sigmoid? Do you irrigate? Is that how you go bagless?
Plus every once in a while you might come across someone in a forum that is able to help because they have the same issue, know someone who had the issue, or they just say something that makes you view the issue in a different way and it helps you find another road towards a solution.
Thank you. That's very sensible. Nothing yet, but hopefully in the future.
Also, I hope you're feeling well and that the meds keep you in remission. You've had a much rougher time than me, and I hope the fistulas and really bad stuff is behind you.
Post Edited (JS44) : 11/12/2016 12:58:10 PM (GMT-7)