I do not have experience with your particular situation, and I agree with Marinanne, there are probably better resources, but I know in the case of people reverting from a jpouch to an ileo, they lose the pouch, which is made of the TI. I had the same concerns. If you use a part of that to make the pouch, and you lose it, can you live a good life after that? Of course preserving the most possible is the best outcome. Since you've already had small bowel surgeries and you have had adhesions, I don't know whether it would be a smart idea to try for a pouch. It sounds like it could be debilitating if things didn't go as planned. With UC, we never had any work on our small intestine, so we have that in 100% condition. It is definitely risky, knowing you're prone to adhesions, and you already have less small intestine than "Normal". At the same time, I believe people have varying amounts to begin with. You have to take into consideration that short bowel is extremely debilitating. I personally would take the end ileo before risking short bowel. I do not know the odds you're facing, but if you read up on ESoR (Rosemary) here, she had short bowel and eventually she allowed herself to wither away because it was no way to live. My end ileo was really a slam dunk. Very easy, no issues, ate what i wanted, felt healthy...
So good to see you too.
Yeah, I've grave concerns about
this. It's not my small intestine that is the problem aspect as to his concern for the "not working" aspect though.
He is thinking the anismus and rectal dysfunction may prevent me from evacuating. That said, I hear you as well. You're saying no adhesions on your side etc., making small intestine 100% from this aspect. Got it.
Oh, funny you said I have less small bowel than normal.
I wrote my surgeon asking if I do in fact have less small intestine now.
I worded it asking "did you just take adhesions off small bowel without altering length of small intestine OR, if you rid adhesions do you have to cut them out in a way the procedure shortens the length of small intestine?"
I wasn't clear on this. Do you know if a small intestine gets shorter from adhesion removal?
Oh geeze, okay I'll read about
Okay just read about
Rosemary so I'm editing this in. I read, she had 16ft of small, after surgery her surgeon said he took out 3ft so she is stumped why she actually only had 5ft left from original 16 ft. Then I read she was trying TPN which I had to look up.Then very tragically passed. This is an extremely sad sad story. :(
So she had very little small. I have about
20 I think, but I'll confirm this in a few days.Maybe I do have less from adhesion removal.
I also asked my surgeon if some J Pouchers have a bit of their lg colon left too as a result of different situation to begin with. Plus all their small intestine. Do you know the answer to this question?
Short bowel syndrome is serious. :(
I sincerely appreciate your input.
You're both incredibly helpful.
Feb/2015 total colectomy*redundant/lazy large colon.7.5 ft.Function test no markers came out after 7 days*Rectal intussusception*Ansimus*Psuedo obstruction.Nov 23-Dec 23/2015 ER.In hospital,2 surgeries.Removed adhesions,untwisted small bowel.Dec15 LOOP ILEOSTOMY.Sick & emaciated 3.5 years no doc believed I can't go/so can't eat.Reversal after 6-12 mos,direct reconnect or jpouch.No pharmaceuticals.
Post Edited (Vancouver-Girl) : 7/29/2016 2:31:49 AM (GMT-6)