Posted 8/1/2016 4:28 AM (GMT -7)
Yes, the wound that didn't heal was from removal of my anus. I was working with a nurse, and we tried a bunch of things -- wound vac, different dressings and packing methods etc. My surgeon got a plastic surgeon involved, and he had me trying silvadene creme etc, and then one day he looked at it and said he could see perineum, and they said I needed to have surgery within a few weeks -- this was about 7 months after my original surgery. It turned out that I had a fluid pocket that was blocking the wound from healing, and there's nothing the nurse could have done that would have made it heal.
I had had an abscess a few days after I went home from my proctocolectomy surgery, where I had to go back to the ER and my surgeon came in at night to tear open some of my stitches and drain it. She said that if I hadn't been on prednisone and so sick, this would have been an outpatient thing, but I spiked a fever very quickly and it became a big deal. This abscess may or may not have been related to the wound not healing.
For the surgery on the wound, the colorectal surgeon fixed the internal issue and the plastic surgeon sewed it up in a fancy way. His protocol was no sitting or bending until it healed, and that was very difficult -- took three more months after some of the outer stitches popped. The wound didn't fully close for about two more years. We had been talking about another surgery, when my nurse tried a new product -- endoform, which was like a miracle -- the wound half closed in about two days after I tried it (after being the same for over a year) and then finished up in a month or so. Endoform works on particular forms of chronic wounds... .I was the first person she'd tried it on a butt wound, and so we were very pleased, but for some people it does nothing, depends on what the problem is (but it's cheap and worth a try).
In any case, if you haven't tried endoform yet, it's worth talking to your nurse about. Hang in -- it's a complicated place to heal a wound, but it definitely can heal, even if it lingers for a long time.