Hello everyone. I am a new member here. I was diagnosed with uc in October 2003. I was eventually medically discharged from the Air Force. Everything went well until October 2004 when I got a major flare. I was on steroids and asacol. I was working in an area that had problems with histoplasmosis(which is a disease caused by pigeon droppings in soil) I got the worst kind of it because my immune system was suppressed from the steroids. I was constantly in the hospital and very ill. I received many blood transfusions because the histoplasmosis made my uc worse. In February 2005 they had to do emergency surgery to remove my colon. Many of my doctors say I'm extremely lucky to be alive. After my surgery things got better. I had a colostomy and the plan was to do three stages of surgery. The first removing the colon, second creating j pouch, and third hooking me up. I was living with the colostomy and in August 2005 it was time for my second surgery. My surgeon and I decided to try and finish the process in the second surgery by creating the pouch and hooking me up because I was doing so well. I had the surgery and woke up with no colostomy. BEST FEELING EVER! But after 4 days at home I was having fevers and they found out that the pouch was leaking inside. That day, 12 days after the surgery, they had to do another emergency surgery to unhook me and give a new illeostomy. There was so much scar tissue and adhesions that they had problems and created a short bowel. Everything went right through me. On top of that, the hole created on the stoma was off to the side and everything emptied to the side and went under the wafer. I've talked to stoma nurses and i'm using the hollister flextend and eakin rings and a belt. It is still very hard to keep stuff from getting under and it is the most irritating and burning feeling in the world. They plan trying to hook me up again but have to wait until the leak inside heals up. Recently they did a test to see if it was healing and it hasn't healed one bit.
Has anyone gone through something like this? It is hard to talk to family and friends because they just can't understand what this is like. They do give good support though. I feel like the wrath of a greater power is unleashed on me and need some kind of hope that this will all work itself out. I am definitely depressed but have hope. I always hoped I would be married by 30. I'm 28 now and don't think that's going to happen.
I appreciate any help or suggestions.