The Sensura Mio has been both amazing and awful in some aspects compared to the Hollister (tape irritation and other issues prompted me to switch). I use the convex light, I no longer have any leaks vs convex soft or regular. I also just recently figured out that, because my stoma (ileostomy) is usually completely retracted, the barrier rings were just swelling over on top of it and irritating the peristomal skin by diverting some of the flow beneath the turtleneck, even if the convexity kept it from really escaping that small area.
My problems now mainly revolve around smell.
They really should have unfiltered bags, it took me weeks of trial and error to fully seal the leaky filters. Because the bag plastic is so chemically resistant, and whatever you use needs to be completely waterproof and non-porous to prevent vapor from getting out, the only thing I've found that works is to apply a quarter size amount of hot-glue over it. At least, I hope that's solved it, I don't know the actual chemistry of the glue and if it's truly resistant- probably proprietary just like the bag material. Hopefully there aren't phthalates or something in the bag material eating through my layer of glue.
The velcro is a pain. I usually don't have an issue keeping the velcro itself clean or folding it properly, but depending on the consistency waste will get into the creases on the sides of the tail
opening and in the crease below the wide-mouthed
opening (where the bag material bonds to the lip). I've used damp toilet paper to wipe, and sometimes go over the inner and outer lip surface with an alcohol prep wipe for sanitation, but it’s nearly impossible to clean 100% once it’s in there and it only takes a tiny amount to make a smell. Also, after
opening and closing the lip it will warp which makes it mandatory to place toilet paper (torn a tad wider than the
opening and folded ½ to 1 inch tall) over the lip to absorb drops that seep out even with the velcro tail firmly closed and sealed. I've even started making an extra layer of similarly folded plastic wrap on top of the tissue to try and keep the smell contained but that only seems to last a short while, plastic wrap is permeable. Because of the width of the plastic lip and the velcro strip attached to the back of the tail I can't seem to use any ostomy clips, so now I'm going to see if I can get a thin flat-ish extra long barrette (or look for barrette style ostomy clips) to seal it off. I’m not sure if that will help much once stuff gets into the creases though.
I'm even considering adding a ring of hot glue to bond the bag to the flange to be sure nothing is getting under there, but I usually feel more secure with the click seal vs hollister's zip-lock style flange that always gave me trouble. I wouldn’t even know how to begin inspecting the bag borders for possible micro tears...
Why are these things so darned hard to seal up?
Any tips/advice for keeping the tail clean and fully sealed? I don't want to take the risk that I'm experiencing phantom farts.
Oh, and they crinkle. I wish they made them in the soft white opaque plastic like Hollister’s.
Has anyone considered making a custom/hybrid/frankenstein hollister+coloplast bag out of sheer desperation? Because that's where I'm at. I love the flange (not counting the inner cut-to-fit section is too flexible), and the click ring. But that's it. I loved hollister's bag material (not counting the fabric), and the lock n' roll, but that's it for them too.
So so tired of this!
Post Edited (aurum636) : 9/5/2016 1:35:34 PM (GMT-6)