Do you remember I asked him 2 specific questions due to his concern
I could have short bowel syndrome potential if pouch doesn't work and
I have to go back to ileo?
My questions were:
1) Do I in fact have less small intestine now?
- he said "no", I have all my small intestine.
2) I worded it asking "did you just take adhesions off small bowel without altering length of small intestine, and untwist my small bowel, OR, if you rid adhesions and it was so twisted up, did you have to cut them out in a way the procedure shortens the length of small intestine?"
-he said "no, could untwist and remove adhesions and not shorten my small intestine length."
ME: I asked many more questions. He left me saying he is not worried asbout my rectal dysfunction if I get pouch as rectum cut out for j pouch construction BUT
he is worried still pfd=anismus, may hinder j pouch success.
It' s a gamble, and he would hate for me to get short bowel reversing back to ileo.
i ) I got on 2 FB groups and none had my conditions,but 4 that reversed back to ileo from pouch not working, did not get short bowel.
ii)One had way less small intestine from needing 7 surgeries so no fault of his, and he has little left of sml int and his quality of life is very very poor. Felt so so bad. :( He wanted to explain what he does daily and he is severe.
iii) I've decided to try it. Anismus makes it tricky but 2 of my surgeons patients had success in j pouch with anismus, 2 did not He ethically can't tell me how they are other than saying the 2 that reverted back have short bowel, BUT I have no idea if they just need more electrolytes OR they are like the severe man that posted to me on FB group.
iv) interestingly the successful j pouchers, and there are many with success too, who posted to me on 1 FB group from USA had never heard of 2ft of intestine being used construct j pouch. They told me their surgeons used only 6-12inches of small int to create j pouch
V) I'm in Canada. My surgeon said he uses 2 ft. Why such a difference? Last question to ask him.
That's it you. I hope you are coming along.
Feb/2015 total colectomy*redundant/lazy large colon.7.5 ft.Function test no markers came out after 7 days*Rectal intussusception*Ansimus*Psuedo obstruction.Nov 23-Dec 23/2015 ER.In hospital,2 surgeries.Removed adhesions,untwisted small bowel.Dec15 LOOP ILEOSTOMY.Sick & emaciated 3.5 years no doc believed I can't go/so can't eat.Reversal after 6-12 mos,direct reconnect or jpouch.No pharmaceuticals.
Post Edited (Vancouver-Girl) : 8/30/2016 10:52:05 AM (GMT-6)