Posted 9/1/2016 1:03 PM (GMT -6)
I had 3 steps and I am doing great now. The surgeries are not easy, and living with the ostomy isn't the easiest (simply because you're focused on getting to the next step), but overall, it's a small period of time in the overall big picture. I have been able to do so much more since i had surgery. I can travel, go out, see friends, work full-time, avoid doctors... I was living like someone twice my age prior to surgery - always seeing doctors, on drugs, getting constant blood work. It wasn't me. Actually the first ileo, the end, is very easy and you will likely get used to it quickly. I was so comfortable with mine, at a certain point, I thought about not going forward with the rest of the steps. I ended up doing it though and it was for the best in my case. I am very thankful to have my life back. When people fight tooth and nail against surgery, at this point, I don't understand it. Before I had surgery, I was the same way, I would have done anything to save my colon. I am so much better off without it, without the drugs, without the expense, and without the loss of time, career growth, opportunities, confidence...
My advice is to find a surgeon with A LOT of experience. Go on a few consultations and make sure you feel comfortable with the surgeon you choose.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!