Posted 9/6/2016 7:00 AM (GMT -6)
I checked out the website- so it's like a giant metal stoma/j-pouch that sits inside your body forever... no thanks! I wonder if you can feel the hardness of it, internally, if you palpate the skin around it??? On the website, it says ppl. empty anywhere from 2-10x a day. I empty about 6x over 24 hours. And the poop just piles up inside your body??? Ugh... I don't know, I mean- an ostomy isn't exactly fun or attractive, but it works. If this metal device is the best they can come up with, even with all the advances in medicine... I'm not impressed. Somehow the thought of this giant, screw-top, metal reservoir implanted in my body freaks me out way more than a bag hanging off it! Plus, I'm done with surgery. Maybe if it were offered as an option initially, but to undergo a revision, in order to get one.... Did you guys read the user manuals too??? This thing has a serious learning curve/healing time! The ostomy was sort of fool-proof.
diagnosed w/UC 2002
Tried Asacol, Rowasa, Pred, Cortenemas, Uceris, Rocephin, Cipro, Flagyl, Imuran, Remicade, Humira, turmeric, slippery elm root, marshmallow root, probiotics, homemade kefir, ayurveda, yoga, meditation, mindfulness, reiki, SCD, vegetarian, dairy free, nothing processed, gluten free... proctocolectomy w/end ileo on 4/14/14!