I have a few thoughts. First was that weight loss before surgery when still sick or still during all the surgeries and recoveries?
Overall from my flare to surgery recovery I lost about
30 pounds. about
15 from flare and 15 more after surgery during my initial recovery. Then once I was healed my weight started coming back quickly. I have gained back 40 pounds. I'm also small so trying not to gain anymore. My GI at my 6 month follow up went into an explanation about
hormones, somethings to do with I was malnourished and underweight and now healthy and my body is adapting. I don't remember her full explanation. It was post ileoscope so still a little drugged at the time. She acted like it was quite common.
The other two things that came to mind were either thrush/candida/yeast issue that may have initially affected her appetite and could be affecting weight. Or a thyroid issue. Has she had any blood work recently where her thyroid was checked? Depending on her age this might not be routinely checked yet.
I also know from my ostomy group that appetite during healing can be wonky and that many gain more weight back than they want. That is mostly the case in UC and Crohns ostomates.
Diagnosed with Crohn's 1998 and PSC 2015
Surgery 10/6/2015 - colon resection with loop ileostomy
Surgery 12/18/2015 - ostomy closure-disease came right back
Surgery 3/3/2016 - total proctocolectomy - so happy to have my stoma back!
Post Edited (cupcakespinkgal) : 10/7/2016 7:56:07 PM (GMT-6)