Posted 10/25/2016 6:28 AM (GMT -7)
You must mean an ileostomy, not colostomy??? Anyway, I empty @6x a day, over a 24 hour period. Once before bed, 1-2x in the AM before I leave for work, then a couple times as needed thruout the day. The output ranges from liquidy to pretty solid, more liquidy in the AM (coffee), thicker during the day. I did have some pancaking, but not much- all I do is push the stuff down from the top of the bag, try to keep the top part clear. I do this anytime of day, whenever it seems like stuff is stuck at the top. RE. skin irritation- are you seeing a wound nurse?? I strongly advise it, they know all sorts of tricks that doctors don't. My skin is so-so- it gets itchy & irritated sometimes around the outer edge of the wafer, but not under the wafer. A barrier ring, like an Eakin seal, will probably help with the leakage. Seriously, your best bet is setting up an appt. with a WOCN at the hospital you had surgery at, & telling them EVERYTHING that's going on, you can work your way thru the issues. Good luck!!! It can be a bit much at first, but gets easier.
diagnosed w/UC 2002
Tried Asacol, Rowasa, Pred, Cortenemas, Uceris, Rocephin, Cipro, Flagyl, Imuran, Remicade, Humira, turmeric, slippery elm root, marshmallow root, probiotics, homemade kefir, ayurveda, yoga, meditation, mindfulness, reiki, SCD, vegetarian, dairy free, nothing processed, gluten free... proctocolectomy w/end ileo on 4/14/14!