I have a scar from a point 4 inches above my navel, around one side of my navel, and down to a point about 3 inches into my pubic hair line.
If you are considering surgery hammer your gastroenterologist with questions. If you meet with a colo-rectal surgeon hammer him also. Research him on the internet. I was so fortunate in that mine is one of the top colo-rectal surgeons in America.
If you can manage to have the surgery when you are in remission do so then. It will make your hospital stay and recovery time much shorter. Your gastroenterologist should know this an will advise you accordingly.
It is important that you drink a lot of water while you are flaring. You also need to replenish your electrolytes with gatorade. It is the best of sports drinks because it was designed for function. It replenishes the salts in the body that enable you to retain water and thus remain hydrated during a time of water loss as in when you are suffering from diarrhea.
Above all, endeavour to maintain a positive attitude. Remember, just when you think you've got problems, look around, there are worse situations than yours. If you are a spiritual person maintain a faith relationship with your God, whom ever he may be. I am a Christian and found myself closer to Christ than I ever had been during my last two years of Pancolitis before my surgery. He guides the hands of talented surgeons just as he healed the afflicted when he walked the earth. Faith is indispensible in time of need.
I wished I had researched these boards when I was sick. I just refused to slow down enough and was actually in denial that I was as sick as I was even though the bloody diarrhea, rectal urgency and incontinence got worse. If you have Pancolitis, it ain't gonna get better. You may get it into remission, but it'll come back. Besides, it increases your cancer risk and then you just though you had problems !!
Hang in there ! We'll be here for you.
Diagnosed w/ Pancolitis, Oct. 1995
Took Dipentum (1200 mg 2x) and later, Sulfasalazine (3500 mg 2x) for maintenance.
Prednisone 35 mg taper to 0 during flares.
Total Colectomy w/ Ileo-Anal pouch Jan. 27, 2005 (re-anastomosis takedown March 17, 2005).
Feeling great and working hard !