Vdahl & Roo said...
With my end ileo, I changed the wafer about once a week, unless there was reason to change sooner. I changed the bag a few times a week (2 piece). With my loop, I changed every day.
I'm just curious... why the time difference for loop vs. end? I have a loop and with my proverbial 20/20 hindsight, I SO wish it was an end. At this stage of my life there's no way I'd try to go through reversing it.
Thanks, VickiMy end was before I had a jpouch created, so I would imagine i had everything I could have available to use. It was just so much easier. My stoma was a bit longer (surgeon's doing of course), but I still needed convex. I had a really cute little stoma, the stoma nurse told me "if you're going to have a stoma, that's the one you want". It worked equally well. No leaks, quite quiet, low output relatively, less emptying, seemed like it was more formed and less liquid output. I don't know if it was because it was my first surgery, or if it was because it was an end and not a loop, but it just worked better. Less problems. I believe loops have 2 ends under the wafer. Mine was shaped more like a dome and it never pointed correctly to go into the pouch, it always leaked very slowly under the wafer and would cause an itch. I would have to change it all the time. Often I didn't even need to change it, it was just anxiety about
the whole situation that made me change constantly. I was never comfortable with it. it may all have to do with the stoma, mine were night and day though. Perhaps yours isn't a problem. I may have just gotten unlucky with my loop. I traveled with my end and I didn't have any trouble. with my loop, I would have had to bring a ton of supplies.
Co-moderator: Ulcerative ColitisCurrently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.