Hello there Hopeso, I have been wondering how you have been getting on.
I know it might not seem like it at the moment but I feel confident that you can over come these problems that you have. I not only have my own experiance but I have also picked up lots of information from reading about other ostomates experiances on Message boards such as this one.
I can't promise that I have all the answers but I will help all that I can.
1... "Extremely loose stools sometimes. Causing rapid heartbeat and fatigue. "
It is an Ileo you have yes? The output generaly should be a sort of apple sauce consistancy. When you say loose,are you saying "watery"? The rapid heart beat could very well be due to low pottassium.(bananas are full of potassium and they also thicken output) Did they check you for this when you were in hospital? Have you got "all" of your small bowel left? I ask this because if you no longer have the very end the "ileum" then it might be harder for you to absorb certain things. I know that that B12 is definatly absorbed in the ileum.
2... "Itchy yeasty on skin around tape now under tape." ...I am no expert on this as I have never had this problem. I have heard though that as well as the eakin seals, somthing called Cavilon spray is very good. it is non sting, It gives a realy good protection to the skin from adhesive and tape but at the same time it helps the flange to adhere to the skin.Ask your stoma nurse about it. Maybe you could also try to eat naturel yoghurt as often as you can(full of friendly bacteria) to help to fight off the yeast (you could maybe mix the yoghurt with the bananas)
3... "I am chewing things well but worried about blockages. Sometimes I will swallow a piece of grissel and then I wonder if it will go thru or not."
Chewing your food well is somthing that you will always have to do while you have an Ileostomy. But after a while it becomes almost automatic and you do start to feel much more confident with this as time goes on. I had one experiance of a partial blockage and I know that it was my own fault,I hadnt chewed some white cabbage properly that had been in a salad. I think I have learned my lesson lol. In general I eat pretty much everything that I want to.
4... "When the surgeon sewed up my bottom he moved the whole area forward and I don't know how I will be able to be with my husband again in that special way. I offended the surgeon, I fear, when I mentioned this to him. If the snow storms stop, I will go see a gyn soon."
Ok, sorry to get personal here but, are you saying that you have tried to be intermate and couldnt ,or you feel as if you wont be able to be intermate?(sorry about my spelling)
Either way, I would like to say that 7 weeks isn't all that long when you have had such major surgery as you have. Not sure if this will help you but I have found that sex feels the same for me as it did before. This realy surprised me because I new that everything had to a certain extent shifted and was now at a different angle to what it was before. My main worry was that I had a lot of vaginal bleeding that went on for 7 weeks after surgery(so getting intermate was a no no for me at that point anyway) I did worry "the first time" but everything was fine. Ask your husband to be patient with you, and hopefully he will be happy to just cuddle for now until you feel that the time is right.
5... "Still trying to find a good fit on appliances. Have been in a study for eakin seals and got three free ones to do the study. They did good, but now I have to pay for them if I want more. I have a dip one one side and a hump on the other, which makes it difficult to seal up the area. Currently I take a coloplast strip, and build it up on the dip side, then put a circle of it on top of that going around the stoma. I have to be getting more than a couple days out of these appliances."
I was very fortunate in that the first bag I tried was the right one for me. I do realy feel for you and others that have such a problem getting a good ftting apliance. There is a "ConvaTec Moldable Convex Wafer " which I have read is very good for uneven places and dips. I don't know if it will be any good for you but it might be worth asking your stoma nurse about it or even call Convatec and ask for some samples.
Also, if you found the eakin seal to be good ,in the long run you might find it pays you to buy them because that way you have more chance of saving money on your bags because you wont get through as many per week. Also, I know that some people cut the eakin in half and strech it around the stoma. That would be another money saver if it was possable for you to do that.
Obviously I wasnt there when you say that you feel you offended your surgeon when you mentioned your intermacy fears. I would have thought though,that he must have heard this many times before from worried patients,so try not to worry because it is your feelings that matter in this instance and if he doesn't understand this then I think maybe he needs to work on his bedside manner. I was thinking similer about your stoma nurse too. She is there to help you,its her job so never feel like you are being a bother. You have every right to find the best most comfortable apliance that you can,and one that doesnt leak. if she cant realise that then she is in the wrong job.
Not sure if any of the above will be of any help but I hope that it will. Don't feel guilty for feeling depressed about things,its perfectly understandable after what you have been through and are still going through.
Take care and stay in touch
PS, I forgot to mention the immodium. In my opinion it is best if you speak with the doctor first about this. mainly because I think it is better to find out the reason why you are having such loose output to start with. Once you are clear on that then maybe it will ok for you to go ahead with it. In the mean time,ask your stoma nurse(I know it seems you will have a list of things but it doesnt matter because getting the help you need is what is important) ask her to get you some samples if she can of some of those gel things(sorry the name excapes me)they look like little pillows,you put one in your bag and anything watery that touches it will instantly turn to a thick gel like substance. There are other things on the market that do similer too.
Post Edited (bag lady) : 12/17/2005 5:39:13 PM (GMT-7)