I am happy I got reversed. I definitely could have lived with my ileo, but I had many of the same issues you mentioned, all of which would have probably minimized if I had the pouch for longer, but I can't say for sure since i reversed. I didn't mind the emptying as much as I minded a bulge or unintentional noises. I also didn't like carrying a handbag all the time, or having supplies on-hand. It wasn't the end of the world for me, and I never needed to use my emergency supplies when I was out in the world, but I don't carry a bag normally, and I don't love being dependent on supplies if I can avoid it. The initial recovery from the takedown was really quick for me. I was out of the hospital in under 48 hours. The period after that where things calm down is much longer. It took months before I felt confident to pass gas, not because I couldn't, but because I just wasn't that familiar with what I was feeling. I am better now, but it's been almost 1.5 years since my takedown. At the same time, I went to parties a month after my takedown. So even though it wasn't perfect, I could manage it with my diet, and it didn't stop me. If I didn't pig out, I could avoid trips for a while. Now, at a year and a half, I can eat whatever, and do whatever I want. Yes, I go to the bathroom more, but it's not urgent, and no one would know I had surgery unless I told them or showed them my scars. I don't want to paint a perfect picture though, I have new problems now. I don't have the most formed output, which can require more wiping. My butt burns from hot peppers so I avoid them. going to the bathroom can be noisy. I clean the toilet more. I get up in the night often to empty. A lot of these things you can minimize with diet. Some people take imodium to reduce trips, but I don't bother. I don't really go that much that it's an issue, but I don't like when it's noisy, especially in public, and it almost always is. I also don't like getting up at night, but I have to eat early if I want to avoid it... You can see it as fantastic or you can see if it a hassle. I try to see the positive. It's much better than I was dealing with having UC. I was going 20x, in pain, spending tons of money and taking all sorts of drugs. Pouchitis i don't know much about. I think it's not often chronic, it's more prevalent in men, but it can happen to anyone with a pouch. Usually it is remedied with antibiotics.
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.