Ileostomy reversal

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theavilal
New Member


Date Joined Jul 2017
Total Posts : 1
   Posted 7/17/2017 3:39 PM (GMT -7)   
Greetings,

This is my 1st post and it is after an ileostomy reversal.

So brief background of the situation. I am 37 years old, who was diagnosed with UC in 2005. The 1st year with UC was devastating, I lost nearly 60 pounds and was hospitalized twice. After the initial year, my UC became far more manageable. I would have flare ups twice a year, once during the spring and once during Thanksgiving. Usually for these flare ups, my GI doc would provide me a prescription of prednisone.

This process worked for the better part of 12 years and I didn't have an issue with it. This past November my GI doc decided to scope my after I reported my typical November flare up. During the scoping, she found several "masses" in my colon that she took biopsy of for further testing. Well two days after Christmas, my doctor meets with me and begins this long drawn out explanation of how she has sought several opinions. Well now I'm worried, and because she clearly wasn't satisfied with her initial findings. In the end, all pathology reports with the opinions revealed I would have to have my colon removed to avoid maybe getting cancer down the road. I wasn't buying her story and refused to have the surgery.

Fast forward 3 months later and a 2nd scoping and now it's determined I have a stricture to go along with the small masses. Now reality has set in and I know I need to have the surgery.

I had my ileostomy surgery on April 21st, with reversal hopefully scheduled 12 weeks after. Things went really well, and I had my reversal surgery on 6/29. However, 3 weeks after my life is a nightmare. Things were never this bad with UC! Currently, I am having anywhere from 15-20 bowel movements a day. I have gone through several post, and followed some treatments that have worked for others to no avail.

I guess my question is; does it get better? I feel pretty helpless and my burning bum is making it worse.

blksteeda
Veteran Member


Date Joined Dec 2009
Total Posts : 1621
   Posted 7/18/2017 6:37 AM (GMT -7)   
I'm guessing you have a J Pouch? You're still very early on after a reversal, it can take anywhere from 6 months to a year if not a little more for things to normalize. It took me 6 months. Initially I was going almost 20x a day and the burning acid had me in tears at times. It was so bad my skin was bleeding. Your body has gone through a dramatic change and it needs to learn how to use it's new "plumbing". What are you doing for your butt burn? I would suggest a portable bidet, they are about 12 dollars on amazon and can be a life saver. Also get a good barrier cream. Calmoseptine seems to be the most popular but there are more out there. Also keep an eye out for pouchitis, I had that early on and needed antibiotic treatment. I also had to deal with strictures that needed dilated a couple times. It will get better but it takes time, it's definitely not an instant fix.
43 Male, South Florida

10/14/15 - J Pouch step one complete

2/10/16 - Takedown and very happy with my J Pouch
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