I put this in the crohn's group but i'll put it here, too. I would be keeping my rectum so no jpouch or bag, if all goes well.
I haven't posted here in years. I'm 34, dx with Crohn's at 21. All is well in that area, things have been pretty quiet for years.
However, my annual colonoscopies have shown an increasing number of polyps over the years with the last one showing "thousands".
All genetic testing has come back negative so they don't know *why* they're happening, but they're all pre-cancerous & to the point that there are too many to remove via colonoscopy.
At my GI's suggestion, I've met with 2 surgeons & both agree a total colectomy with ileorectal anastomosis is the best option as the polyps (& crohn's) have always been in my colon.
I'm looking for stories of people that have been through it. Tell me what to expect. I have a 3 year old & a 4 month old.