I have hurt Freddie and I think he is really upset!!! Help

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 692
   Posted 10/15/2017 9:15 PM (GMT -7)   
Hey guys...and gals...

I had a very very klutzy day......I bumped my stoma on the side of a doorway. I felt it after I hit it and then I proceeded to bump it again on a countertop. The right side developed a raised white ridge at the edge where the skin meets the stoma. It ached for a couple of days. After that it was just this raised white ridge of skin......

Then a month later...

I ate a piece of steak that was tough. Freddie started swelling up and going down, I got very nauseas, and finally I passed that piece of meat today and it was followed by watery output. I changed my wafer almost daily because Freddie would swell up so big the right side of the wafer would pinch the outside of the damaged ridge of skin.(because I was cutting the wafer big enough to allow expansion I cut it to fit on the other side of the ridge rather than the side of skin facing the stoma) Today I changed my wafer and that ridge at the bottom of it looks like it was cut by the wafer. It was bleeding. I put stoma powder on it, cut my wafer as large as it would go...I can see a quarter inch of skin around the stoma....but the eakin is covering it up.... The swelling has stopped since I passed that piece of meat.... It does not hurt right now....but

Is this something you are supposed to go in for? It seems ok now....but I am concerned because the cut looks like it is taking off that layer of skin on the right hand side of my stoma and if it does come off there will be intestine showing...

I dunno...it is the first time he's been hurt like this and it is freaking me out. Sorry for being a baby... I just don't want anything else to go horribly wrong.... Maybe it will just heal back shut and it will just be a ridge again....

So do I just wait, call the stoma nurse, make an appointment????

Any advice is appreciated!!

Clo

PS.....Another question....Can you sleep with an electric heating blanket if it lays on your stoma? Or do you use just regular blankets?

Thanks again for all your help! confused confused confused

Post Edited (clo2014) : 10/15/2017 10:18:51 PM (GMT-6)


clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 692
   Posted 10/16/2017 12:14 PM (GMT -7)   
O Kay then..

I will answer my question just in case someone else has this happen.

I called my stoma nurse and sent her pictures. The ridge was a build up of excess skin. The wafer cut it right at or right below skin level. We are trying to let it heal back together. If it doesn't I have to make an appointment with the CRS to ensure the stoma site is still optimal. If it isn't they will have to do a revision......

Whaaaaaat? It an eighth to fourth of an inch more of the intestine that will show....... Revision????????

Aaaaagggghhh....

And the electric blanket.....don't let it rest right on your bag. Have a sheet or a comforter in between.

Clo.
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15260
   Posted 10/17/2017 8:42 AM (GMT -7)   
Wow clo, I am sorry you hurt Freddie and that it could potentially lead to a revision. I really hope he heals and doesn't require surgery. I always lay under an electric blanket, but I don't have an ostomy bag anymore. Did they say it's bad for the integrity of the supplies?
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 692
   Posted 10/17/2017 8:53 AM (GMT -7)   
Hey NSSG,

It is bad for the supplies. The extra heat impacts adherence and longevity. Who would have thought? The stoma nurse said that she sees more skin irritation and leaks during winter months with patients that use electric blankets-especially if they use higher settings and have heavy blankets on top of them causing the electric blanket to press down on the stoma. She also advised me to closely monitor output as the heat can cause your stoma to slow down or speed up in some people.

Weird.....

Clo

notbob
New Member


Date Joined Jul 2016
Total Posts : 6
   Posted 10/31/2017 2:32 PM (GMT -7)   
Clo,

Hope Freddy is going to be okay.

NotBob.
UC for 10 years, last two+ had the never ending flare from hell. Tried the usual meds, pills, steroids, biologics, diet, supplements and nothing worked. Had perm ileostomy Feb of 2017. Feel great!

Plucky
Regular Member


Date Joined Jun 2013
Total Posts : 347
   Posted 11/2/2017 5:56 PM (GMT -7)   
Hey Clo, just saw this. Glad you got some direction from your nurse. I'm surprised they would consider revision for that, since my ostomy nurse and surgeon say they rarely mess with a stoma post-op.
37yr female, dx UC '04, dx changed Crohn's Colitis '17
Currently: Total Colectomy Oct. 2017!
Previously used: Remicade, Humira, Stelara, Imuran, 6MP, Apriso, Asacol, Lialda, Delzicol, Pentasa, Cortenema, Cortifoam, Rowasa, Canasa, Entocort, Uceris, Uceris foam, Prednisone
I'm Gluten-free. Supps: VSL#3, Cal/Mag, Vit D, Krill oil, EZFE

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 692
   Posted 11/2/2017 7:15 PM (GMT -7)   
Notbob,
Freddy is slowly healing. Thank you for the encouragement.


Plucky,
Normally they don't do a revision. I had issues with my stoma separating from the surrounding skin, (right after surgery) then I developed this mote that developed fistula, and had a difficult time healing. Apparently the skin around the stoma is compromised and it extends out a little ways-and of course that is the side I hurt Freddie on...so the skin just recessed and currently you can see the top of the stoma and the side of my colon that is supposed to be under the skin.

I didn't feel pain, just itchy after wafer changes, and there wasn't a lot of blood...so I thought it was from weight gain. (And weight gain can cause your stoma to get bigger) My stoma has gone from 30-35 mm to 53-55 mm showing now.

The good news is the hole has stopped getting bigger And I get to wait until after Thanksgiving to go back in...and apparently the skin is sorta healing.

This hardly ever happens. I was just one of the lucky ones...but life is good. Freddie is working.

Hope all is well with you.

Clo

Plucky
Regular Member


Date Joined Jun 2013
Total Posts : 347
   Posted 11/3/2017 2:37 PM (GMT -7)   
clo2014 said...
Notbob,
Freddy is slowly healing. Thank you for the encouragement.


Plucky,
Normally they don't do a revision. I had issues with my stoma separating from the surrounding skin, (right after surgery) then I developed this mote that developed fistula, and had a difficult time healing. Apparently the skin around the stoma is compromised and it extends out a little ways-and of course that is the side I hurt Freddie on...so the skin just recessed and currently you can see the top of the stoma and the side of my colon that is supposed to be under the skin.

I didn't feel pain, just itchy after wafer changes, and there wasn't a lot of blood...so I thought it was from weight gain. (And weight gain can cause your stoma to get bigger) My stoma has gone from 30-35 mm to 53-55 mm showing now.

The good news is the hole has stopped getting bigger And I get to wait until after Thanksgiving to go back in...and apparently the skin is sorta healing.

This hardly ever happens. I was just one of the lucky ones...but life is good. Freddie is working.

Hope all is well with you.

Clo


Oh boy, that makes sense then--it's complicated. But I'm so glad Freddie is healing! XO
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, November 23, 2017 5:21 PM (GMT -7)
There are a total of 2,897,280 posts in 317,993 threads.
View Active Threads


Who's Online
This forum has 157566 registered members. Please welcome our newest member, e2w3e.
247 Guest(s), 6 Registered Member(s) are currently online.  Details
mattamx, PeppermintTea, Hoagie, Yellow1955, Cyclone-ISU, Lanie G


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.