I wish your nation the best. I hear a lot about
Absolutely 120% yes, yes, yes. With the options that exist as of 2017, my stoma is the best that could possibly be for me. My Jpouch was a menace and the concept is a really terrible one regardless. I do not pass up an opportunity to speak about
this to any GI I meet or otherwise interested clinician.
I don't need to worry about
soiling myself or otherwise being concerned about
urgency. I poop where and when I want to! There is no pain (my stoma is a little tight, so I do get some pressure, but this is not a big deal). I do have to go to bathrooms more often as I dislike having the bag significantly full. But these are manageable inconveniences as opposed to pain, drugs, and continuing autoimmunity.
I am a lot safer from IBD now. There is no fecal reservoir for fecal stasis to occur, and there is no more "oh that's just normal inflammation." There is NO inflammation. Instead of having a shoddy replacement (let's face it: surgeon vs. God/millions of years of evolution is no contest) for my colon, I have no replacement. There is no organ expected to perform the role of a fecal reservoir anymore. The brilliance of the stoma is that it does not try to recreate that which was lost: it accepts that loss and that we will be reliant on a device.
It is worth noting that I am doing extremely well with my set-up. Coming on a week with this current bag and it can take a day or two more. Honestly I think that those who go through the pain-staking trial and error process can get the same level of results, especially as products only continue to improve. Logistically I figure out my supply chain for my products and make sure I have them in my work/recreation places as needed. It's just a simple problem to figure out. Psychologically my bag does not affect my self-worth (I think it's kind of cool actually) and I am confident that when I am ready I will find a partner who can accept me with a stoma (otherwise they can shove off
). Not everyone feels this way.
My pouch removal surgery was hard and had complications that left me miserable for two months (I don't think mine was usual though). I am glad that as a male my man-parts are fine. I do have some phantom soreness/throbbing a little, but I am generally not even aware of it. In short, I caution you that this is a hard surgery to get through and I as a male put myself through significant risk to do this.
24 y/o male
UC: Diagnosed proctitis September 2013; pancolitis January 2014
Conventional drugs not successful
Supplements, LDN, antibiotics, SCD probiotic yogurt,SCD/Paleo diet,FMT,
Nothing worked. 12/2014 Jpouch. Jpouch failed due to pouchitis and chronic sepsis. Removed 1/2017; Ostomy revision 3/2017
YOU CAN'T JUST "TRY" THE JPOUCH
Proud, very healthy ostomate who is now living life disease-free