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Doggiedo
Veteran Member


Date Joined Jan 2014
Total Posts : 619
   Posted 11/7/2017 7:26 PM (GMT -7)   
I’ve been using a bidet, wipes, the comfort toilet paper, and cream, but it’s finally kicked in and burning really bad. also have pretty bad urgency. Any suggestions? I’m tempted not to eat so i won’t have to go as much. Would that matter? My poor butt

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15235
   Posted 11/7/2017 8:18 PM (GMT -7)   
I have to tell you the truth, I had all of what you describe at first. The capacity was just so low that I would have to go. It wasn't necessarily urgency like with UC, like i'd have an accident if I didn't get to the toilet, but it was pretty bad where i felt like I needed to get to the bathroom for my own comfort. The beginning with a new pouch is tough. I had some lidocine gel left over the surgery I'd put back there. There is a point where you keep it too moist back there and you can cause yeast though, so you have to be careful not to use too much cream. Have you tried wet wipes? What kind of cream are you using? Protectant? I remember a time when I was really struggling and I felt very defeated, but things have gotten so much better. It takes time. Have you gone for follow up? You may be able to eat fibrous foods to attempt to thicken output so it burns less. Some people have issues with certain foods to. Tomatoes can be acidic. Anything with peppers... I still avoid spicy buffalo wings. I ask for everything mild or medium (if i am being daring).
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

blksteeda
Veteran Member


Date Joined Dec 2009
Total Posts : 1621
   Posted 11/10/2017 8:23 AM (GMT -7)   
my butt burn in the beginning was absolute hell. It burned so bad I was in tears. No amount of wet wipes, bidet or cream would help at times. My skin got raw to the point of bleeding. Now, it rarely happens and no where near the intensity as in the beginning. Try looking up a product called ILEX, it's a really good barrier / skin protectant
43 Male, South Florida

10/14/15 - J Pouch step one complete

2/10/16 - Takedown and very happy with my J Pouch

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4780
   Posted 11/13/2017 10:56 AM (GMT -7)   
have you tried putting the cream on right before the BM? sort of a protective layer.

I did not have butt burn, some people do not get it. I've had chronic pouchitis from the start.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Doggiedo
Veteran Member


Date Joined Jan 2014
Total Posts : 619
   Posted 11/13/2017 2:35 PM (GMT -7)   
Bleeding? That sounds horrible! I bet that’s the worst combo- open sore and stool hitting it ? No wonder it healed at all.

I am using s cream the hospital gave me and rotating that with AD ointment. I use it after ever bowel movement. It seems to help. The one time i had pasta sauce/lasagna, boy was that a bad idea! It must have been the acidity but i don’t want to try that again soon.
UC since 2003, hospitalization in 2006, Feb 2017, July 2017

Previous meds- Asacol, Imuran, Prednisone, Apriso, Entyvio, Remicade, Jax-inhibitor trial drug, cort enema and supps

Step 1 & 2- ilestomy and j pouch creation - Aug 2017
Step 3 - Nov 2017

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1546
   Posted Today 6:48 AM (GMT -7)   
I can't recommend this from personal experience since I never had a jpouch but I saw a lot of reviews for this product from jpouchers with butt burn when I was researching barriers for my ostomy.

Ive never seen anyone mention 3M Cavillon durable barrier cream. But from research h I was doing some swear by it and you don't have to apply every time. Might be worth a try if you are still having issues.
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!
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