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Doggiedo
Veteran Member


Date Joined Jan 2014
Total Posts : 691
   Posted 11/7/2017 8:26 PM (GMT -6)   
I’ve been using a bidet, wipes, the comfort toilet paper, and cream, but it’s finally kicked in and burning really bad. also have pretty bad urgency. Any suggestions? I’m tempted not to eat so i won’t have to go as much. Would that matter? My poor butt

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16064
   Posted 11/7/2017 9:18 PM (GMT -6)   
I have to tell you the truth, I had all of what you describe at first. The capacity was just so low that I would have to go. It wasn't necessarily urgency like with UC, like i'd have an accident if I didn't get to the toilet, but it was pretty bad where i felt like I needed to get to the bathroom for my own comfort. The beginning with a new pouch is tough. I had some lidocine gel left over the surgery I'd put back there. There is a point where you keep it too moist back there and you can cause yeast though, so you have to be careful not to use too much cream. Have you tried wet wipes? What kind of cream are you using? Protectant? I remember a time when I was really struggling and I felt very defeated, but things have gotten so much better. It takes time. Have you gone for follow up? You may be able to eat fibrous foods to attempt to thicken output so it burns less. Some people have issues with certain foods to. Tomatoes can be acidic. Anything with peppers... I still avoid spicy buffalo wings. I ask for everything mild or medium (if i am being daring).
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

blksteeda
Veteran Member


Date Joined Dec 2009
Total Posts : 1661
   Posted 11/10/2017 9:23 AM (GMT -6)   
my butt burn in the beginning was absolute hell. It burned so bad I was in tears. No amount of wet wipes, bidet or cream would help at times. My skin got raw to the point of bleeding. Now, it rarely happens and no where near the intensity as in the beginning. Try looking up a product called ILEX, it's a really good barrier / skin protectant
43 Male, South Florida

10/14/15 - J Pouch step one complete

2/10/16 - Takedown and very happy with my J Pouch

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5046
   Posted 11/13/2017 11:56 AM (GMT -6)   
have you tried putting the cream on right before the BM? sort of a protective layer.

I did not have butt burn, some people do not get it. I've had chronic pouchitis from the start.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Doggiedo
Veteran Member


Date Joined Jan 2014
Total Posts : 691
   Posted 11/13/2017 3:35 PM (GMT -6)   
Bleeding? That sounds horrible! I bet that’s the worst combo- open sore and stool hitting it ? No wonder it healed at all.

I am using s cream the hospital gave me and rotating that with AD ointment. I use it after ever bowel movement. It seems to help. The one time i had pasta sauce/lasagna, boy was that a bad idea! It must have been the acidity but i don’t want to try that again soon.
UC since 2003, hospitalization in 2006, Feb 2017, July 2017

Previous meds- Asacol, Imuran, Prednisone, Apriso, Entyvio, Remicade, Jax-inhibitor trial drug, cort enema and supps

Step 1 & 2- ilestomy and j pouch creation - Aug 2017
Step 3 - Nov 2017

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1563
   Posted 11/18/2017 7:48 AM (GMT -6)   
I can't recommend this from personal experience since I never had a jpouch but I saw a lot of reviews for this product from jpouchers with butt burn when I was researching barriers for my ostomy.

Ive never seen anyone mention 3M Cavillon durable barrier cream. But from research h I was doing some swear by it and you don't have to apply every time. Might be worth a try if you are still having issues.
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!

Bull101
Veteran Member


Date Joined Feb 2015
Total Posts : 510
   Posted 11/21/2017 2:37 PM (GMT -6)   
Just an FYI, my surgeon actually said my problem for raw skin was (and still is) moisture. With all the wiping etc. it makes it pretty raw, when I start having feelings like I need to go and I try to hold it some my butt starts sweating really bad and I get a bad case of swamp butt. That moisture breaks down my skin and makes it very raw which doesn't help and actually can start bleeding. My surgeon recommended baby powder to aid and said sometimes the creams can actually make it worse by breaking down skin further.

Virdent
Regular Member


Date Joined Nov 2014
Total Posts : 115
   Posted 11/22/2017 2:09 PM (GMT -6)   
Are you using any Loperamide? Epsom salts/warm baths after right after if things get really bad. The area eventually gets use to the acidic nature of the bowel movements over months and years.

Some people will always struggle with certain foods, tomato sauce, nuts, acidic things in general and chocolate for me were bad.

Now if you know you've had a food that will burn you can prep the area right before, with either zinc cream, even vaseline will create a temporary barrier, I always liked to have multiple creams around. Penaten medicated worked well when things got bad.

Post Edited (Virdent) : 11/22/2017 1:14:58 PM (GMT-7)


Doggiedo
Veteran Member


Date Joined Jan 2014
Total Posts : 691
   Posted 11/22/2017 6:56 PM (GMT -6)   
Ugh the idea of giving up chocolate terrifies me, lol. I’ve been eating so well lately I don’t have any desire for sweets. I’ve already found tomato sauce as a tough one. I’ll try the salts. Should prob clean the bathtub then.

I’ll try the powder but on my toosh not on my girly parts, lol.

I got rid of the depends but it gives me more anxiety bc I don’t have the security of having a backup.

Thanks for the tips guys. Tough night tonight..actually hurt my butt to sit after an episode. I’ll let u know how it goes.
UC since 2003, hospitalization in 2006, Feb 2017, July 2017

Previous meds- Asacol, Imuran, Prednisone, Apriso, Entyvio, Remicade, Jax-inhibitor trial drug, cort enema and supps

Step 1 & 2- ilestomy and j pouch creation - Aug 2017
Step 3 - Nov 2017
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