Ok, now I’m feeling down

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Doggiedo
Veteran Member


Date Joined Jan 2014
Total Posts : 618
   Posted 11/8/2017 5:25 PM (GMT -7)   
One week post surgery and I’m feeling down. I’m alone all day and by the evening I’m sick and tired of going to the bathroom. I have a puzzle set up on the dining room but I don’t feel like sitting there for too long of a time. I just watch tv mostly.

Any suggestions as to what I can do to start feeling normal again? I haven’t tried driving yet. And to be honest I’m not sure I can be away from the bathroom long enough to go anywhere anyhow.

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1542
   Posted 11/9/2017 6:58 AM (GMT -7)   
Not sure where you are but can you get some sunshine?

The sun on my face really helped when I was recovering. At the time of my last recovery it was only about 50 degrees but my mom made me bundle in a blanket and sit in the sun for 20 minutes.

I'm sorry you are down but it is early. Recovery is rarely a straight
Line. You will have ups and downs for the first few weeks. Hang in there and try to get some fresh air or sunshine if even only for 5 minutes!
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15235
   Posted 11/9/2017 7:47 PM (GMT -7)   
Trust me, I can relate. I was there... Dare I say there was a time when I worried things were never going to be better? I really had to bite my tongue and wait. It's frustrating and upsetting, but it will improve. It doesn't take days or weeks, it takes months. Try to remember how you are now, then compare to how you are in a few weeks & you will see that you're improving. The darkness coming so early also doesn't help. You should get out and walk around the block. You will start getting used to the feelings and be able to hold it more. Right after surgery, I had a lot of gas pain and I was scared to pass it because i had bad luck with gas early on. I would get up from bed to go to the bathroom to pass gas. It was awful. You will slowly get better and better, but I wouldn't judge anything for a good 2 months, or even longer.
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

Doggiedo
Veteran Member


Date Joined Jan 2014
Total Posts : 618
   Posted 11/10/2017 1:30 PM (GMT -7)   
I tried to take your advice and took a short walk with the dog inn tje sunshie yesterday before it got cold (today).

Months? How am I going to manage being back at work? I can tell it’s getting a little bit more manageable with holding it but i think I’ll have a lot of anxiety going back to work. Months means after the holiday- will it really take that long to get back to normal?
Moderate to severe colitis, diagnosed in 2003, hospitalization in 2006, Feb 2017, July 2017 for colitis related complications

Step 1 & 2- ilestomy and j pouch creation surgery on Aug 25
Obstruction - hospitalized early Sept
Step 3 - Nov 2

Medications: Zantac, oxycodine, Tylenol, heparin

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15235
   Posted 11/10/2017 1:42 PM (GMT -7)   
Normal, yes. Functional, no!

I went to a holiday party about 4 weeks after takedown, I did use the bathroom there once, but it was such a small thing to deal with compared to having active UC and going repeatedly & being stuck in there for long periods each time. I even had a martini and ate everything i wanted that day. It was basically a reintroduction to normal life party for me, a holiday party for everyone else.

I am happy you got out in the sun. That is good for you. turn
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4780
   Posted 11/13/2017 7:52 AM (GMT -7)   
I bought Depends before my Takedown surgery, I never needed them but I bought them just so I would have some freedom if I needed to get out of the house.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
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