I go between 1-5 times a day, no urgency and I can hold it for hours. I go when I wake up and before I go to bed, I do not need to wake up at night to empty my pouch.
I don’t enjoy spicy foods anymore or eat fiberous foods. I’ll eat a steak before I eat a salad, which was the exact opposite before I got uc. I drink a lot of water and I’ll drink alcohol whenever I feel like it.
Have you had your first scope yet?
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!www.healingwell.com/community/default.aspx?f=38&m=3755226