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CharlotteR
Regular Member


Date Joined Jan 2017
Total Posts : 71
   Posted 1/12/2018 2:30 AM (GMT -6)   
Hi All,

I have an ileostomy (almost a year) and I am currently flaring. The next step is probably a permanent stoma for me. I'm bleeding a lot. The suppositories used to help, but now, not so much. I have a Dr. appointment next Thursday. How do I know if I'm bleeding too much to wait until then? I don't have a fever and my energy is good. I'm really nervous about seeing so much blood. Sounds like I'm pouring a cup of water into the toilet but I'm really bleeding twice a day. Help!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/12/2018 12:50 PM (GMT -6)   
Are you waiting to complete j-pouch surgery? What do you have now? A loop ileo? An end ileo? It's possible the bleeding is perfectly normal. Did you see valli's post about rectum bleeding post jpouch step 1? It's a few posts down on page 1.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

valli1234
Regular Member


Date Joined Aug 2017
Total Posts : 131
   Posted 1/23/2018 10:10 PM (GMT -6)   
CharlotteR said...
Hi All,

I have an ileostomy (almost a year) and I am currently flaring. The next step is probably a permanent stoma for me. I'm bleeding a lot. The suppositories used to help, but now, not so much. I have a Dr. appointment next Thursday. How do I know if I'm bleeding too much to wait until then? I don't have a fever and my energy is good. I'm really nervous about seeing so much blood. Sounds like I'm pouring a cup of water into the toilet but I'm really bleeding twice a day. Help!


I know it’s scary I just went to the the bathroom and thought it was the watery mucus coming out but it was pouring blood. I have read its normal ... but to me it’s not !! Grrr guessing it’s coming from the rectum did they leave yours in? Are you waiting for a j pouch ?
I have my check up with my surgeon tomorrow and this is my number one concern
I will let you know what she says
Notsosickgirl is right it could be normal... but after bleeding for 6 months then removing my whole colon it would have been nice to know this could happen . I don’t need anymore blood transfusions 😬😢

yellowcolon
Regular Member


Date Joined May 2016
Total Posts : 32
   Posted 1/24/2018 8:40 PM (GMT -6)   
hi CharlotteR

I had my surgery for a temp ileostomy over a year ago in July 2017. For a couple months now I've had bleeding from the rectum. It seems like every nurse/doctor I tell always says it's normal to have a little bit of mucus and blood (couple teaspoons), don't forget that the rectum is still diseased. I know from reading your post that I've had the same experience as you for a while now (lots of fresh blood, once or twice a day).

My advice is don't let it be a problem for too long. I hated the suppositories and enemas so much and they didn't work very well, I just ignored it.. which is the worst thing you can do. I lost so much blood I needed a transfusion roughly 1 month ago. My hemoglobin was around 70, normal count is around 140-180.

Once you get so used to it.. you also get used to feeling tired, not having so much energy, dry lips, pale skin, etc ..

I just got prescribed a cortifoam enema and I'll say it's a lot more comfortable than my previous medications. Once the suppositories don't work as well, you may be switched to a different type of medicine. Let your doctor know as much of the gruesome details that are necessary. Transparency is key! I am also taking iron and vitamin C supplements. They work well together and can help the healing process.

I recently saw a surgeon and talks of surgery were discussed. Keeping that little bit of rectum is unhealthy and can lead to colon cancer. I'm leaning more towards keeping my stoma permanent, that's a choice that you will ultimately make. More people lean towards j pouch surgery. There is a great community here that can answer all your questions.

Take care!
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