Posted 4/17/2018 1:41 PM (GMT -6)
Hi Mother - What a story! I don't have much to offer except to say I am thinking of you both.
I had UC for 34 years and all was fairly quiet until dyplasia started showing - and I had surgery as quickly as I could schedule, they found cancer They believe they got it all) and now I am on "preventative" chemo. So I can relate to the mood of going along and then BOOM.
There are a few private groups on FB; one for ileostomies and there are quite a few FAP folks there... maybe there is an FAP group also? I hope someone here can chime in from experience, but if not, you might want to look in those places also.