Have you had a consultation with Dr Shun at the Cleveland Clinic? He is the go-to doctor for tough pouchitis cases.
I found Augmentin to be the best antibiotic for my pouchitis. Sometimes I would take it with Cipro.
Dr. Shun recommends the keto diet for pouchitis cases.
The other thing that people do is go back to a loop for a few months while the biological works and clears up their pouch (giving it a break from working). And then reattacking later. The pouch removal is a much larger surgery.
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!www.healingwell.com/community/default.aspx?f=38&m=3755226