It is weird that you have a rectum. Most of us have it removed with the jpouch procedure and the pouch becomes the "holding tank". Inflammation in the pouch can have a variety of causes. Have you had biopsies? What did they show? have you tried medication? Some people use antibiotics or biologics to treat pouch inflammation.
If you want to go through with a perm ileo, i completely understand, but i don't think it's your only option. You may have medical options to treat the inflammation. Do your parents go with you to the GI/Surgeon? Who's made the recommendation for a perm?
That said, I've seen a few people here decide to have pouch removal due to poor function or inflammation. All of them worry about
sexual function, but I haven't actually seen anyone face it. It is definitely something to consider, but i don't think it's so common that you can expect it. I would imagine it is fairly rare. You should ask your surgeon for statistics and make a decision once you have accurate nnumbers. We do have one past member who wanted to go back to ileo, but was scared of sexual malfunction, and he opted to keep his rectum for the time being and go to a loop ileo.
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From Sickly to UC Free
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