Ileostomy closed but living in the bathroom!

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New Member

Date Joined Jan 2006
Total Posts : 18
   Posted 2/10/2006 7:13 PM (GMT -6)   
Hi everyone,
I recently got reconnected from having an ileostomy for 20 years. (Got it when I was a week old and I am now 20). Everything is going great as far as my incision healing well and being able to walk around and stand up straight without any pain and such. My only problem that I can't seem to resolve is that I'm still going to the washroom so often. My day starts off great, I wake up and eat breakfast and don't have to go for a couple hours or so, then I eat lunch and still just put out a bit afterwards. Right before dinner or right afterwards I start to go every half hour to 45 mins and that doesn't stop until around 10 at night. Because i'm going so often my anus is getting really raw and it gets painful to pass anything. My trips to the washroom usually become less frequent until around midnight when I go to bed and then i'm up every single half hour to an hour throughout the night. I havnt had a good night's sleep in almost a month. I'm on imodium which is helping a little and I've been applying Ihle's paste to help with the sore bum but it doesn't seem to be helping in the evening and during the night.
Does anyone with experience have any advice that you know works well? If so please let me know so I can get some sleep and resume a normal day!
Thanks so much.
p.s. The surgery I had done was called the Duehamel's (spelling?) procedure. If anyone else has had this done please let me know as well.

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Date Joined Apr 2005
Total Posts : 17895
   Posted 2/22/2006 4:03 PM (GMT -6)   
     Ashley, I'm so sorry you are having these problems.  It seems to me that since you don't have a colon, you will be going to the bathroom more frequently than the average person.  That being said, you shouldn't be going THAT often!  Maybe, since your intestines have gone through this "shock" they need to be "babied" a little.  Eat things that are easy for your intestines to digest.
     I am prone to partial bowel obstructions.  I have an ileostomy, also.  Anyway, when my system has gone through a lot, I find it best to stay with a softer, "mechanical" diet for a while so that my intestines can "heal".  I also chew my food very well.  I eat soups, soft things like eggs, meat cooked in a crock pot, mashed potatoes, veggies cooked well, cereal with milk or hot cereal, etc.  I try to avoid fresh fruits and vegetables.  (I"ll eat fresh veggies if they have been cooked crunch.)  I avoid corn, peas, anything with an outer casing or a crust like fired chicken.  I eat canned fruit.  I only have to do this for a week or so.  Maybe try this and see if things settle down.  Then add things, a little at a time, until you are on your regular diet. 
     Also, try Desitin (sp) the diaper cream for your sore backside.  I think it would help to heal it as well as be a protection to your skin.  I hope all settles down soon.
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