ostomies and sexuality

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

simone
New Member


Date Joined Feb 2006
Total Posts : 2
   Posted 2/15/2006 7:57 PM (GMT -7)   
 hi, I am a nurse practitioner finishing my masters. I am trying to write an article regarding ostomies and sexuality. the article willprovide information to all levels of nursing regarding sexuality issues. I would like this article to provide information regarding some of the problems such as: knowing etrerostomal therapists are great sources of information regarding ostomies what information should the regular staff nurse know about sexuality and ostomies. I have heard about ostomy lingerie that fits or hides the pouch,  crotcheless panties, tube tops etc. also vaginal dryness and erectile dysfunction can be an issue. I have also researched the different appliances that can be used. Any other ideas? What questions did you want answered? Do you feel the nurse should bring up the topic regading sexuality? (the literature says yes as we discuss bowel and bladder already with ease ). I thought I should cover all the bases and put the questions out there as I only know 2 people with ostomies and have already heard from them.
thanks for your input
Simone

Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 2/16/2006 5:09 PM (GMT -7)   
To be honest, I got most of my information about living with a stoma from message boards like this one. Although the nurse at the hospital was very good about making sure that I didnt go home until I could do a bag change,got the right bag for me etc. Other than that it was then a case of "phone if you have a problem"

I think that more information should be offered "before" someone has the surgery. I feel this is important especialy when Rectum removal is involved. I am female and I wish that someone would have explained about what could happen after surgery with periods, and sex. Because the rectum is no longer there, my womb is now tilted at such an angle that when I get a period it sort of pools in one area and hangs around longer than it should. I can have nothing for hours and then suddenly it gushes(sorry to be graphic)I am actuely on day 16 of a period(not massive amounts now thankgoodness) but I never where I am with my dates anymore. Removal of the rectum has also made it impossable for the Doctor to be able to take a biopsy from me as even with me under a general anesthetic he just could not get past the cervix. Thankfully sex has not been painful or difficult but because of this problem with the way everything has now "shifted" I also have a problem with (shall we say Body fluid) hanging around longer than it should and this concerns me because I worry that I might end up with an infection. Don't get me wrong,I can live with all this, after all, my surgery has given me my life back. But I do wish that someone would have taken the time to explain what "might" happen after surgery. At least then I could have been prepared.

Sue


simone
New Member


Date Joined Feb 2006
Total Posts : 2
   Posted 2/16/2006 5:21 PM (GMT -7)   
Thanks for the input Sue, the article I am writing will be exactly that, infor that you shopuld discuss with your patient before during and after. I will also let one of my collegues know re the periods, sex and biopsy problems that you have encountered as she is an ET and often sees the patient before the general duty nursse. I guess what I am asking then is should I put int he article that perhaps the patient should discuss with the patient the complications that can arise after surgery as the uterus can shift etc. Was this ever discussed with you? I have read about the dryness that can happen etc. What about regualr paps are they different now as well?
Again thanks for getting back to me, I have been reading message boards to get more info and it certainly has helped.
Besides this is there any other questions that you felt should have been discussed before or after surgery?
Thanks Simone

Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 2/17/2006 4:08 AM (GMT -7)   
Hello again Simone.

As it happened,I had a pap test(I call it smear test here in England)just a few months before my surgery. Thankfully it was normal. I realy don't know what is going to happen when I am due for another one because as I mentioned in my above post,the Doctor could not get in there and aparently he tried every which way. I am so glad I was under a general anasthetic. The reason the Doc wanted a biopsy was because I had vaginal bleeding for 7 weeks following rectum removal. In the end it was decided that as the scan and blood tests didnt show anything other than normal that they would leave me alone. And in answer to your question, no I dont remember anyone talking to me about the "shift "of things that would take place with the removal of the rectum. I suppose when I think of it now, it is only common sence that this shift would happen,but at the time I was only thinking of the advantages of getting rid of a diseased rectum so the gyne side of things was the last thing on my mind. A leaflet to explain this side of things would have been good I think

I was thinking, that before my first surgery for the Ileostomy,that the stoma sight might have been discussed a bit more with me. As it happens the nurse marked my stomach just right and I am happy with my stoma position. But I didnt realy give it much thought at the time and I wasnt asked if there was any reason why I would want the stoma higher or lower or whatever. Speaking with different ones over the 3 years since my surgery,I have realised that not everyone would be happy having there stoma sighted in the same place as me. Some people are into sports such as car racing,rock climbing and a number of other things. I think this has to be taken into account when deciding where the stoma will go because the person might need to wear a harness or some other contraption for a sport. Also, it seems that many people I have spoken with have had a problem with leaks from the bag after surgery because the surgeon didnt make the spout of the stoma long enough. The surgeon is probably thinking he is doing the patient a favour by giving them a nice neat and farely flat stoma but in reality this only causes problems for the patient after surgery. Again,I was lucky with this and have no problems but maybe a list of these things would have been good so that the patient can discuss all the options with the surgeon before hand.

I hope this has been of some help.

Sue


bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 583
   Posted 11/8/2012 2:31 AM (GMT -7)   
I have not been approved for that kind of activity yet, so I can't say much from experience, but I have been on these message boards for quite some time and have heard a lot of people talk about how after surgery they have trouble in the sexuality department: low libido, not feeling sexy, pain or discomfort for females (very common in J-pouch patients!), ED in men....

My sex questions before surgery were pretty basic:
- How will the procedure affect my vagina/sexuality/etc?
- How long do these effects last?
- Is there anything I can do to help avoid/prevent/treat these issues?
- How soon after surgery can I have sex?
- What percent of patients have permanent issues/problems sexually after surgery?
- Anal sex is off the table forever now.... right?
- How will my period affect my J-pouch? (When I asked my surgeon she said it wouldn't, but I have read otherwise on these forums.)

What I can say from experience is that when women are engaged in such activities, their abdominal muscles often will automatically tighten up a LOT as part of their response, which can cause a bit of stinging around a fresh stoma if it is still healing.

And I'd just like to add that about three weeks out from my proctocolectomy is when my sex drive finally started to RETURN after being gone so long due to disease and drug side-effects. I was sure glad to see it again. I am now just over a month out; I have noticed no ill-effects in that department (though still just running "solo" - able to maintain arousal, no dryness, etc.), and it is only getting stronger, so... not all the outcomes are bad. You could list increased libido due to returned health as one possible post-op effect. ;-)

I do think the nurse should bring it up first just by asking if the patient has any questions regarding surgical effects on sex/sexuality. Sometimes people have questions but aren't sure how to bring it up or are too shy to ask. It was not discussed by any medical practitioner with me, but I wish it had been.
Follow my story: ronnielee-fightingforit.blogspot.com

32-year-old single female (teacher)
10/4/12 - proctocolectomy / J-Pouch construction / loop ileostomy
Take-down scheduled December 11th

Dx mild/moderate UC 1995
Dx severe pancolitis 2011

Post Edited (bootstrap) : 11/8/2012 2:38:28 AM (GMT-7)


blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 11/8/2012 6:42 AM (GMT -7)   
I think you should make sure your article does not only focus on sexuality issues for heterosexuals. Many nurses (and others) use "sex" as a synonym for heterosexual intercourse, but sexuality is much more broad than that. Depending on the context, many people who are gay/lesbian or otherwise have same-sex partners are not going to feel safe with you unless you make it clear that you are safe.

Suzy that's interesting about shifts in the angle of your vagina -- I've noticed that too. It's a pain when I take a bath or swim, just seems like so much water gets trapped in there.... doesn't seem as extreme as yours, but there are some issues w/blood getting out for my period.... I have had a pap smear since surgery though. Hope someone can figure something out for you....
50 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound Sept 2011. All healed up now. Healthier than I ever expected to be again...

ddd45
Veteran Member


Date Joined Mar 2009
Total Posts : 572
   Posted 11/8/2012 7:34 AM (GMT -7)   
Simone. I just couldn't imagine ostomy nurses discussing sexuality issues. ALL of theET nurses I have encountered and that has to be well into the double digits because I am on my fourth ileostomy.. are completely focused on getting an appliance/system to work or solve the current problem I am having with my current appliance/system. I think the hugest thing lacking for me was the  complete lack of information from my ostomy nurse BEFORE surgery regarding what an ostomy was. Granted my surgery was emergency.. but there was a meeting in which she came in to speak to me and mark me for my stoma. She could have at bare minimum brought in some ostomy appliances. I mean I had 2days waiting in the hospital from surgery decision to being on the operating table. I think an ET nurse should of spent more than 5minutes with me. 
 
Anyways - suzy.. I am absolutely floored by what you described. As I have been dealing with the EXACT same problem to the EXACT same level you describe since my jpouch excision and back side removal and permanant ileostomy surgery last spring. Basically the vagina is tilted AND part of it bent/curved backward so that fluid sits on a "shelf". This fluid pools in there until it hits a certain volume and then RANDOMLY gushes out in massive volumes. Such massive volumes that pads etc.. won't deal with it.
 
I too was not warned of any potential gynecological issues; however I was warned  in depth about potential urology issues. go figure. I strongly believe that the colorectal surgeons should discuss potential issues in advance - menstrual problems, pain, anatomy changes, sexual pain,  and other gynecological things. This is a doctors job, not an ostomy nurses job. They are aware that these problems can happen so it sure would have been nice to know about it. In particular, for me... my jpouch excision and permanant ileostomy surgery was a long hard thought out decision-making process which involved myself, my surgeon's head nurse, my surgeon, and my GI doctor over about a 6month timeframe. At no point in time.. did anyone mention potential gynecological issues.
 
Anyways... this problem has been so major for me that I have found some "fixes" shall we say. I have been working with a urogynecologist to make this situation more acceptable to live with. First and foremost have you fully been examined for a fistula or any kind of opening in any of the walls of your vagina? This would probably have to be under anesthesia  because if it is like my situation they cannot access your vagina in entirety because of the anatomical changes. My urogyn. checked me while I was checked while under anesthesia with my colorectal surgeon to deal with my perianal wound. If there is a fistula some of this fluid could be urinary or peritoneal fluid. This is the first step. Initially  I had a fistula - from a massive abscess. So that was attributing to some of the fluid that was pooling. My fistula  has now has healed on its own. But that was only part of the problem!
 
Then she had me douching every few days or so with just a vinegar/water douche. No chemicals. What this does is with the pressure of the douche water pushing up into there, it "backwashes" out the area where the fluid is pooling. It is super gross to do but it cleans  out most of the fluid so that it won't gush on its  own when you are in the grocery store or in a yoga class or out in a pub. Problem with this though it that you have to do it very often so it was causing irritation if you know what I mean, and I sometimes felt that some of the douche fluid was hanging out a bit up in there.
 
So most recently, my urogynecologist devised a contraption for me to proactively "suck" out the fluid. Depending on how much fluid is pooling or if it is just pooling on your periods.. kind of will depend how often to use it. For me, I can feel the gross fluid pooled up in there, so I know when I need to do this. Sometimes it is a couple times a day.
 
She also had me get a Mirena IUD.  The goal of this was to reduce my periods, because  like you.. they are massive and long just adding to the huge volume of fluids pooling. She could only do this in surgery because my anatomy is so changed.  I cannot say whether the mirena has been a success or yet not. I have only had it for about 2months and it has been very painful. Supposedly it takes a while for the mirena to "settle in". But if it works.. it may make this situation entiretly more manageable.
 
I cannot believe what a relief it is to hear I am not the only one suffering from this supposdely uncommon occurence. I was very disturbed by my colorectal team not taking my newly shifted anatomy problems seriously, but I hunted  out a very good urogyn. and she has been able to help me.  So hopefully Suzy, some of the tricks I have described may be able to help you too
let me know.
and good luck with your project simone.
liz.

Post Edited (ddd45) : 11/8/2012 7:44:31 AM (GMT-7)


bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 583
   Posted 11/8/2012 8:05 AM (GMT -7)   
Just FYI, finding the right birth control pill can also help reduce the frequency, duration, and intensity of periods. With the one I'm on right now, I only menstruate once every three months, and even then it only lasts a few days with minimal bleeding and none of the standard symptoms/effects like cramping, bloating, or mood swings. I love it. Could be included as one possible remedy/suggestion for patients who have trouble with their periods being affected.
Follow my story: ronnielee-fightingforit.blogspot.com

32-year-old single female (teacher)
10/4/12 - proctocolectomy / J-Pouch construction / loop ileostomy
Take-down scheduled December 11th

Dx mild/moderate UC 1995
Dx severe pancolitis 2011

YYC
Regular Member


Date Joined Jun 2012
Total Posts : 75
   Posted 11/8/2012 11:53 AM (GMT -7)   
I agree with ddd45. I couldn't imagine the ostomy nurses I had discussing sexuality issues. In my experience, the nurses didn't even provide the information they should have with respect to the ostomy/stoma. They basically put a bag on me, sent me home and said call if you have any issues. The nurses only provided information I asked questions about and since my surgery was emergency I didn't know what to ask. Also, for the 2 weeks I was in the hospital, I barely wanted to look at my stoma or deal with changing the appliance. The nurse's only concern was making sure I could do a bag change on my own before I went home. Intimacy wasn't even close to being on my mind at that point. Other than 1 follow-up appointment a week later, the 2 weeks I spent in the hospital was the only contact I had with the ostomy nurses.

Most of what I learned and all of the support I got were from the people on this site.
05/17/12 - Bowel resection to remove endometriosis
05/25/12 - Emergency surgery due to leak in join resulted in temporary ileostomy
Reversal planned for Fall 2012

allbluezoo
Regular Member


Date Joined Feb 2012
Total Posts : 446
   Posted 11/8/2012 5:43 PM (GMT -7)   
Suzy - count me in your group too! Last time I was in the hospital they sent GYN down to examine me b/c part of my problems were a brown/blackish vaginal discharge. No odor at all. Scared the bajeesus out of me as I immediately thought fistula. Anyway, she had a HELL OF A TIME with the speculum the first time and I was in SO much pain from it. She stopped and went for a manual exam first and popped her head up to say "OH That is why it was so painful - it's like a roller coaster in here!" All my 'lady parts' had tilted backwards :( Turns out I had bacterial vaginosis and the pooling of stuff TOTALLY makes sense as to why/how it happened! I haven't had intercourse since before my surgery (Dec '11) and ugh that just makes me feel horrible. My husband was so afraid to touch me for so long and then when he was over the fear and I was feeling up to it he started having issues :( We are striking out all over the place.
Melissa
Dx Crohn's disease 2003
Hospitalizations to numerous to list
Prednisone, Rowasa, Pentasa, 6MP, Remicade, Asacol, Humira, Imuran, Flagyl, Cipro
Total proctocolectomy with end ileostomy 12/15/2012
Currently battling peristomal Pyoderma Gangrenosum, tx topical steroid ointment, silver powder, aquacel AG dressing and back on Humira

bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 583
   Posted 11/8/2012 6:30 PM (GMT -7)   
Wow - I had no idea that was such a possible issue/complication! I've never heard of it before this particular thread. If it is happening to more than just a couple women, then it is definitely something that female patients should be aware of so they can watch out for it or know that it's a possibility if they have similar issues at home or during exams. I would freak if that kind of stuff started happening and I had no idea what was going on. Thanks for the heads up, Ladies. That's why these forums are golden.
Follow my story: ronnielee-fightingforit.blogspot.com

32-year-old single female (teacher)
10/4/12 - proctocolectomy / J-Pouch construction / loop ileostomy
Take-down scheduled December 11th

Dx mild/moderate UC 1995
Dx severe pancolitis 2011

ddd45
Veteran Member


Date Joined Mar 2009
Total Posts : 572
   Posted 11/8/2012 8:44 PM (GMT -7)   
melissa.. that's EXACTLY how the fluid issue first started for me. brown, black, gray fluid GUSHING out about 2months after my original surgery. And I mean gushing. Lets just say when I went to my PCP's office they had to mop the floor after she tried to check me out. GROSS.
anyways... hopefully some of the methods my urogyn figured out for me will help you.
and to whomever posted above.. the mirena IUD is a form of birth control which is approved to reduce menstrual periods. The hormonal "whole body" impact of it is supposed to be substantially less than oral birth control pills.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 11/9/2012 5:17 AM (GMT -7)   
I had really bad gushing after my original surgery, but I thought it was because I didn't get my period for a few months.... I am perimenopausal too, and that can happen (happened before surgery)... also I couldn't sit at all then, so trying to deal w/my period standing was unpleasant and involved much floor cleaning....it did quiet down some, but I get it sometimes still, very annoying (I stained the couch once just sitting on it, through my pants etc, yuck!). I can't really sort out what is from surgery and what isn't, and I'm sorry to hear what you both have gone through.... but helpful to know that's a factor....
50 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound Sept 2011. All healed up now. Healthier than I ever expected to be again...

allbluezoo
Regular Member


Date Joined Feb 2012
Total Posts : 446
   Posted 11/9/2012 7:07 AM (GMT -7)   
Liz, yes oh my gosh! The greyish too! I was having lower rt quad pain with it so my surgeon was FREAKED OUT! She actually admitted me without even seeing me in the office - I showed up at the hospital and BOOM I was in a room. She doesn't screw around with me since I am always having some weird stuff happen. I have noticed that if I lean to the left when I am on the toilet (emptyping pouch or whatever) and it is close to my period stuff will gush out - like I am putting pressure on a certain spot and it is forcing things out. Huh, weird. I'm definitely bringing this up the next time I see my GI or surgeon or both to see what they think. I suppose I should get up with the GYN people and go over this info - I guess they don't deal with people's shifting insides much?

I wish birth control was an option for me but I developed a blood clot the last time I took any so NO ONE will prescribe for me. THe GYN actually suggested a hysterectomy which I am all for - my surgeon however is not, not right now or in the immediate future at least.
Melissa
Dx Crohn's disease 2003
Hospitalizations to numerous to list
Prednisone, Rowasa, Pentasa, 6MP, Remicade, Asacol, Humira, Imuran, Flagyl, Cipro
Total proctocolectomy with end ileostomy 12/15/2012
Currently battling peristomal Pyoderma Gangrenosum, tx topical steroid ointment, silver powder, aquacel AG dressing and back on Humira

ddd45
Veteran Member


Date Joined Mar 2009
Total Posts : 572
   Posted 11/9/2012 8:18 AM (GMT -7)   
melissa - yes sometimes you can get things "untilted" should I saw with "toilet gymnastics". That was my first attempt, trying to change physical positioning to get stuff out so it wouldn't randomnly gush.
If the mirena doesn't work out for me.. its hysterctomy time. But because  I've had so many colorectal surgeries.. my urogyn does not want to do it. She cannot do a vaginal hysterctomy because my anatomy is so messed up. So if its done, she has stated my colorectal surgeon must be there. I consulted with him on it and he said its not really a big deal colorectally that all he was going to do was "lift up and hold the bowel" for her. needless to say that kind of freaked me out.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 11/9/2012 1:34 PM (GMT -7)   
This is so helpful I can't begin to tell you!!!!!! I have been having issues ever since surgery. I finally got into a urinologist after a year and that didn't even come close to helping. Now that I know what the problem reallly is and why life just might get better. AThey kept telling me it just needed to be stretched out?!??!
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

ddd45
Veteran Member


Date Joined Mar 2009
Total Posts : 572
   Posted 11/9/2012 2:45 PM (GMT -7)   
Even though I totally commandered Simone's post... I want to thank her for getting us talking. I am truly floored as to how many of just the few on this board are having the same issue. I am very very fortunate that I had the energy and determination to find a good understanding urogynecologist (the first one I found was useless - maybe because he was a male and thought it was no big deal!) that figured it out and understood that living like that was simply not acceptable. Though its unfortunate that so many of you are having the same problem, it really does make me feel better that I am not alone in suffering. Please anyone.. if you want more detail on what my urogyn has figured out for me in order to manage this issue.. let me know.

Affton
New Member


Date Joined Nov 2012
Total Posts : 6
   Posted 11/10/2012 12:46 AM (GMT -7)   
Very interesting page

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 463
   Posted 11/12/2012 2:40 PM (GMT -7)   
Simone,
Thank you so much for your posting and yes its great information from everyone. i know when i had my ileostomy a little of a year ago, following surgery the nurses seemed scared 2 deal with me or my questions. if it wasn't for my husband being so amazing it would have made the transition a more difficult one. So thank you everyone for your honesty.
 
Serenitee

Peace&Harmony
Veteran Member


Date Joined Jul 2010
Total Posts : 1144
   Posted 5/25/2014 1:18 PM (GMT -7)   
Thanks Pluto for finding this thread for me. It definitely fits my situation! Guess I'll print it out and bring to my GYN appointment...wonder if she'll be able to get up there now after reading all this!
Diagnosed with UC, July 2010
proctocolectomy with end ileostomy, Sept 2012
Anal stump removed due to complications, Dec 2013
Bye Bye UC!

UCwhat?
Veteran Member


Date Joined Dec 2012
Total Posts : 1037
   Posted 5/26/2014 3:13 PM (GMT -7)   
I haven't read every post on this thread in detail, but did skim through them all quickly. I have a few things to add that may or may not be relevant.

As for WOCN's talking about sexual issues. All 3 of the nurses I have dealt with at my hospital brought up the topic of sex after surgery, without me every inquiring. They wanted to be sure and make certain I knew it was very possible and shouldn't change things. That said, very little was said about how the organs and stuff in there could be rearranged. I have definitely notice things feel a little differently now, but nothing I haven't been able to get used to.

Birth control~ I had heard before surgery that the pill might not be absorbed as well once I didn't have a colon, but no one could really tell me for sure how likely it was to not be absorbed properly. This wasn't something I wanted to take a chance with, so after surgery I chose to go with an IUD. Getting it put in hurt something AWFUL and the doc said my cervix has a turn in it and that my uterus is back far. I don't know if it's always been that way or if it's due to the surgery. My last pap was a bit more uncomfortable than normal also.

Period~ I haven't had a normal period since December of 2012, about 3 months before my surgery. I think it stopped because I was so sick and had lost so much weight. When I decided to get the IUD a couple months after surgery, my OBGYN gave me 2 rounds of meds to try and jumpstart me period, they did not work. She did a couple tests and decided it was OK to go with the IUD anyway. Since then I have had some random bleeding and spotting, but nothing I would call a period. I have also notice that when I do bleed, most of it comes out in the toilet or is absorbed by a tampon. If I don't have a tampon in, the blood doesn't come out on my undies. My OBGYN now have me on a low dose estrogen pill to see if it stops the spotting. I stopped taking estrogen containing birth control years ago due to it causing blood pressure issues. Not sure if I should keep the IUD or what at this point.

Urination~ Has anyone else noticed that since surgery it is sometimes hard to empty your bladder? A lot of times I feel like I have to pee, sit down and it will take a while to start coming out and/or takes a few separate "pees" to feel like my bladder is empty.
DX:6/12 Mild Ulcerative Proctitis:got/kept remission w/1 Canasa nightly
MAJOR Flare began end of 11/12
Flex Sig 12/14/12:UC,moderate/severe left side
Flex Sig 2/4/13:UC Severe into transverse colon
Prednisone refractory,little to no relief from enemas or Remicade
Proctocolectomy w/end ileostomy 3/13/13
Pathology showed Severe Chronic UC throughout
No more drugs and life is GREAT!

Peace&Harmony
Veteran Member


Date Joined Jul 2010
Total Posts : 1144
   Posted 5/26/2014 5:12 PM (GMT -7)   
Hi UCwhat

The only thing I noticed about urinating is that I do it more often due to no colon. Since I go to the bathroom often to pee I just empty my bag at the same time no matter if it's full or not.

Also my core muscles are weak. During my physical theapy eval they told me to "Try and pee" so they could evaluate that muscle and it was. Still weak. When I sneeze I feel like a little pee comes out.

If you feel like you need to pee but can't it may be due to something pushing up against your bladder ?
Diagnosed with UC, July 2010
proctocolectomy with end ileostomy, Sept 2012
Anal stump removed due to complications, Dec 2013
Bye Bye UC!
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, November 23, 2017 12:47 AM (GMT -7)
There are a total of 2,897,061 posts in 317,965 threads.
View Active Threads


Who's Online
This forum has 157544 registered members. Please welcome our newest member, nancydaviko.
236 Guest(s), 4 Registered Member(s) are currently online.  Details
alunke82, exbenzo, Charlie55, Big Tasty


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.