I am sorry that you are going thru this. There are others that have had the surgery you are requesting information on. Hopefully they will come along and add their experiences.
What has your doctor recommended? Does your doctor want to do this all at once or thru multiple surgeries?
I have severe fistulizing Crohns. I have had 3 colostomy surgeries. (2 were due to adhesions/blockages) They did create a Hartmanns pouch but they left the rectum/anus intact the first 2 times. (My colorectal surgeon tries to leave it alone unless there are issues that he can not find a work around for....or if you develop signs of a higher risk for developing cancer.) I have a low rectovagina fistula and the mucus drainage was causing UTIs, that I could not clear while on antibiotics, so a 3rd surgery was required. The 3rd surgery game plan was to remove the Hartmanns pouch, rectum and anus. (Which should remove the mucus producing problems and hopefully clear my UTI issues) They performed a modified APR and removed the Hartmanns pouch, the rectum as much as possible and scrapped the anus..(so it basically is just a thin flap of skin with an
opening.) So my experience is probably not what you are looking for.....but my surgeon said he has had many patients ask him to do this rather than the other. (With me...there were physical reasons why we could not completely remove the anus.) He indicated that depending on the person some people don't need to have the anus/rectum completely removed. I think Its easier on the patient.
I don't know if this is an option for you..but for me it appears to be helping. I do know there was another lady that was on the forum that had a surgery very closely resembling mine. She had some issues but seemed to be doing ok.
Oh...and for me...everything still works and feels. No pain.
Post Edited (clo2014) : 5/23/2021 8:59:00 PM (GMT-6)