Posted 6/16/2021 2:33 PM (GMT -6)
Geez, it's been so many years since my operation, but, I will try to summarize it. I had my proctocolectomy June 28, 2010 at Pennsylvania Hospital in Philly. I was hospitalized 11 days due to some complications post op. My husband and daughter could not remember what the surgeon told them when he phoned from the operating room....something about bleeding, so he left the anus instead of keeping me under anesthesia longer than necessary. Believe it or not, I didn't know he left the anus intact until my first post op office visit!
The problems inside the anus didn't develop until 4 yrs after my operation. By that time, my surgeon had retired. I didn't like the guy who replaced him , so I found a colorectal surgeon here in Jersey. I started feeling pressure inside the anus and mucus was coming out of the anus...no bleeding. The new surgeon did biopsies which showed inflammation inside the anus, but no malignancy. He suggested I come every year for biopsies, until two years ago. when he told me I could wait two years. It's a little past two year mark. The pressure has increased, so I am concerned the inflammation may have gotten worse. I wear a panty liner every day for the mucus, but, it isn't bad.My surgeon said he would not have done the surgery any differently than my original surgeon. Apparently, to remove the anus is another serious operation. I thought it was easy, maybe just go into the anus and cut it out, but no, apparently, they will have to cut me open in the same fashion as my first operation. I have had a permanent ileo. I also have a RVF, but the doctors tell me to leave well enough alone because there is no feces passing through. I'll know more after next month. I will be 75 in August, so, definitely NOT looking to undergo any unnecessary surgeries.