Posted 7/30/2021 11:05 PM (GMT -6)
I am in the Dallas Fort Worth area so I am unable to recommend a good CRS down there. There is Dr. Warren Lichliter (CRS) at Dallas Baylor University Hospital. He is an outstanding CRS. He has performed 2 emergency surgeries and 1 planned surgery on me. I have severe fistulizing Crohn's and a permanent colostomy. Love this doctor.....and I don't say that lightly.
I had this happen after one of my surgeries. At first they feared pyroderma gangrenosome...instead it was my skin separating from my stoma because of weight and skin issues. I worked with my dermatologist and CRS and the wound nurse. It took 6 months to heal. It was a complete circle the size of a barrier wafer surrounding the stoma. I had to use lots of stoma powder when I changed my appliance, change my appliance every 3 days and let the skin dry out as much as possible without an appliance on. It was touch and go. There were times we used a chemical to cauterize the area. (Sorta uncomfortable) But it healed without a hospital visit in about 6 months. (But many doctor visits and phone calls.)
I eventually did develop pyroderma gangrenusom close by the stoma area. That was handled with hot salt water soaks of 45 minutes twice daily and then letting it dry out with a fan on it. That one took me a year to heal. (It kept opening back up.) It started out as a large blister...usually it starts with a small or several small fluid based blisters. They pop, and then the wound starts getting deeper. For some people it stabilizes. For others they require shots in the wound, wound care and possible hospitalization)surgery.
I would keep shopping for a good CRS, contact a good dermatologist, reach out to your surgery hospital wound care center and your Primary care physician.
Any questions please just ask.